CSN Login
Members Online: 5

complete esophageal blockage

amy_evan2005
Posts: 42
Joined: Nov 2009

Hi, we are looking for anyone with experience of blockage due to radiation. My husband finshed radiation & chemo for throat cancer the beginning of Sept. & is still unable to eat. He finally went in to have esophagus dilated yesterday only to be told that they were unable to do it because he has complete blockage because of scar tissue. We go in tomorrow to set up surgery & find out details.
Thank you,

Amy & Evan

amy_evan2005
Posts: 42
Joined: Nov 2009

Hi William. We live in Indiana. We're not really sure what surgery they are doing. Other than somehow they have to get it open in order to dilate it. We can tell from the reaction from the ones that gave him his barium swallow test last Friday & the reaction yesterday from the GI Dr's & nurses that they have let him go way to long without looking for the problem. I actually had a nurse from the GI office get into it with the nurse from the ENT office yesterday about the severity of his blockage & the fact they wouldn't see him yesterday since they are only one floor apart in the same building. Then when they told her they couldn't do anything until after first of year because the Dr. is going to Venezuela for Christmas she just gave up trying to get them to do anything more quickly. I am going to try to find a Dr. for a second opinion. We are suppose to be with "The Best" in our area, but I've yet to see it. He elected to have his gtube put in in July & thankfully he did. He has totally used his tube since August. He has lost forty lbs. Thank you for caring enough to write. Just communicating about it, at least, makes you feel like your not alone in this.

Best wishes to you & yours,

Amy & Evan

oriontj
Posts: 390
Joined: Jul 2009

Amy where do you live in Indiana...we're in the Northwest IN...and my husband goes to the U. of Chicago Center for Advanced Medicine...he was told he couldn't have surgery..so he did a clinical trial and had Erbitux and two other chemo drugs...Are you close to Chicago or Indinapolis or even some of the Ohio or Kentucky hospitals? I agree with William maybe it's time to look elsewhere...praying for you and Evan.

jan

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

I am also in Va Beach, Mr. Marshall, incidentally.

I thank you for the prompt and kind reponse on behalf of this individual.

Take care,

Joe

Tina Blondek's picture
Tina Blondek
Posts: 1560
Joined: Nov 2009

Hello and Welcome to this site! As far as a complete blockage is concerned, there is surgery that can be done to open the esophagus. As well as dilation and having a stent put in to open it up. Good luck and prayers are being sent.
Tina

Frederick Emil
Posts: 4
Joined: Aug 2012

Hi Tina, i am Frederick, I need operation for my blocked esophagus due to radiation. Can you pls help me findd a doctor and hospital that will treat. I am unable to eat by mouth for more than 2 yrs now and desperately seeking for treatment. Thank you!

amy_evan2005
Posts: 42
Joined: Nov 2009

Evan went to the ENT Friday & she just doesn't understand how it can be completely blocked because when she looked down it in Nov. she didn't see a blockage. Maybe because she had already told me in Nov. that she had looked down his esophagus while she was in there but her scope was too big to go in to far. She now wants to go in this Wed. before she leaves[nurse had wrong week for Dr.'s vacation] to go through out patient surgery so she can try to get her scope down in to dilate. She has already told us that her scope is bigger & doesn't bend like the GI specialist that couldn't find an opening. I asked her if she had looked @ the pictures, because there is no opening. She just would like to try. Evan isn't going to let her do it until we get a second opinion & probably won't let her do it then.Thanks for the sites to look on. I'm sure they will help on our search for answers. Once again thank you all for your time & answers.

Amy & Evan

amy_evan2005
Posts: 42
Joined: Nov 2009

Dear William & Loretta,
Thank you so much for your time & your caring. I will call Angela tomorrow & speak with her. I spoke with the GI specialist that tried to dilate last week today & they told us the reason they had sent him back to the ENT is because the blockage is so high up it's more in the throat area than what they deal with. I remember the ENT initially saying they were sending us to the GI specialist because it is in the esophagus which isn't really their area of expertise. I can see in the pictures that it is in the esophagus behind the voice box which is where the tumor was. I'm not sure who's "area of expertise" this would fall under, but I agree with you, so far everyone we've seen has "passed the buck". They have absolutely no idea what they're dealing with from the oncologist to the ENT to the GI Dr.'s. I will keep you updated about what happens. I have the next three days off & I'm going to do some research.

Thank you,
Amy & Evan

amy_evan2005
Posts: 42
Joined: Nov 2009

just wanted to let you know i've been without my computer so i haven't been able to stay in contact. Angela was very nice and very helpful. Evan is looking at surgery march 22nd to try to open it up. The new general surgeon we have did inform us that the reason this isn't normally done and not many can do it is because a stint should have been placed in before total blockage happens. Just wanted to once again thank you for your and your wives kindness and help. Will let you know what happens.

Amy & Evan

amy_evan2005
Posts: 42
Joined: Nov 2009

just wanted to let you know i've been without my computer so i haven't been able to stay in contact. Angela was very nice and very helpful. Evan is looking at surgery march 22nd to try to open it up. The new general surgeon we have did inform us that the reason this isn't normally done and not many can do it is because a stint should have been placed in before total blockage happens. Just wanted to once again thank you for your and your wives kindness and help. Will let you know what happens.

Amy & Evan

amy_evan2005
Posts: 42
Joined: Nov 2009

Just brought these up so they were easier to find.

Ed_PortOrange's picture
Ed_PortOrange
Posts: 110
Joined: Jun 2010

I'll keep you posted on my progress.

Tina Blondek's picture
Tina Blondek
Posts: 1560
Joined: Nov 2009

Hi Amy and Evan
Just checking in with you guys. Have not heard from you since March 10. How is Evan doing and did he have surgery to get rid of the scar tissue blockage?
Tina

amy_evan2005
Posts: 42
Joined: Nov 2009

Hi Tina,
Yes, they finally got him open about a month or so ago. He still isn't swallowing great or enough to survive on, but he is swallowing. Strangely, food better than most liquids. They removed his trach also so that was alot better for him. He finally has a good doctor and that has made so much difference.
I've been on the head and neck board, but not this one lately. Sometimes forget what was asked where. Hope everyone is doing great and thanks for you caring.
Amy & Evan

amy_evan2005
Posts: 42
Joined: Nov 2009

Dear William & Loretta,
Thank you so much for your help and advice. The Thorasic Surgeon that Evan saw referred us to this doctor. He also happened to be in the same group at IU Medical Center that Angela recommended. Both the thorasic and ent doctor operated on his esophagus to get it open. One went through the mouth and the other through the stomach with scopes basically until one saw the other ones poke through. Surgery took several hours, but once they got it through it wasn't very thick so that made it easier. Evan has had several dilations in the past few months and is finally starting to eat again. He has some issues now with the muscles and all not working properely. He won't see the doctor again til the end of July. Just now waiting to see how everything goes for awhile before they decide if he needs dilated again.
All his biopsies and his pet scan have come back clear so that is the best news we could get. The rest is just going to take some time and work.
I'll keep everyone updated now that I have internet service again. And yes the blockage was from scar tissue. The Thorasic surgeon told us that a stint should have been put in when he started having problems swallowing so early in radiation.
Thanks again,
Amy & Evan

Frederick Emil
Posts: 4
Joined: Aug 2012

Hi good day! I am Frederick Emil R Tapawan from the Philippines, I am 31 year-old male and was diagnosed with a tonsillar cancer last March 2010.
I went through a lot of treaments already. Radiation therapy, chemo, cryosurgery, etc
amy, i am happy that your husband evan can eat already. I am so happy to see your posts regarding evan's problem , because it is just the same as mine. I had chemo radiation last aug 2010, but in early 2011 I was not able to take in foods anymore even liquids. I had endoscopy very recently and found out that my esophagel opening is completely blocked by scar or fibrosis. I have been feeding thru a tube for more than 2 years already, and was not able to eat by mouth also. So, i was so happy that you were able to find a treatment for your husband evan.
If it is not too much for you, may i ask for the hospital and the doctors who conducted the operation to evan, and also the estimate costs you incurred.
I am desperately looking for a treatment facility to be able to eat again normally. I hope you can give me the information i need so i can plan my possible treatment there in the US. i hope you can help me, i know u fully understand what i am goinng through just as you and evan did.
I am hoping for you reply , thank you!

MrMike
Posts: 2
Joined: Jan 2013

I went in today for an endosccopy to dialate my esophagus.  I completred chemoradiation (35 rad, 6 chemo) in October 1012 for throat cancer at the base of the tongue but have had no success at all swallowing anything since treatment.  I had a total response to the chemoradiation as far as the cancer goes but swallowing is severely impaired.  They did not dialate today because the doctor could not get the endoscope into my esophagus.  He only said that he would set up a procedure in hospital with an ENT.  I am not sure what to expect.

Any ideas?

Mr Mike

 

 

 

Amjosmom's picture
Amjosmom
Posts: 231
Joined: Jun 2012

Maybe they will place a stent to help keep the esophagus open? Since you've completed chemo/rads, I'm not sure they would place a feeding tube, but that's an option if you can't eat anything...

By the way, welcome to the board. Hopefully you will find some answers here.

MrMike
Posts: 2
Joined: Jan 2013

A disappointing day for me.  Went to the gastroenterologist for an endoscopy and  dialation.  I am not sure of details as when I talked to the Dr. I was still under the influence of the light anesthesia.  But he could not dialate because it interfered with my respiration and they had to bring me out.  The blockage is at the top of the esophagus.  He is sending me to an ENT for a laryngoscopy, will then confer with the ENT and reattempt the dialation under full sedation at the surgical center.  So it'll be another month or more before all this gets done. You know how pushing up appointments works. I have been on the PEG tube exclusively for more than four months now.

I was so hopeful that he could dialate and get me possibly sipping some fluids but no luck.  I should be thankful that the the PET showed a complete response to the chemo radiation treatments, but I am bummed out over this outcome.  For a guy who likes his wifes cooking more than anything this was not a good day.

Better tomorrow I guess after I put some more resolve in the bank.

Mr Mike

Amjosmom's picture
Amjosmom
Posts: 231
Joined: Jun 2012

You're probably just inflamed because of the radiation. Give yourself time to recover. Hopefully your next dilation will be a success!! Keep us posted!

minikit
Posts: 24
Joined: Nov 2011

Are repeat dialations/stents avoidable?

I pose this as hubby's gullet is to brittle to attempt further dialations - some limited relief has been found in coke -  with small mouthfuls several times a day, always flushed with water 20mins later this helps control the build up of "rubble" added initially was a short course of low dose steriods. While not brilliant the gap is just big enough to for small amounts of liquid everything else is through the peg!

 

 

 

 

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network