Dec 17, 2009 - 4:40 pm
I posted recently in another thread about my 50 year old darling wife.
Heather was disgosed with an anaplastic astrocytoma level 3 in her right front temporal lobe.
80% of the tumour was removed in surgery and she has just finished 6 weeks radiation coupled with Temodal chemotherapy orally.
All along we have ben told that this is beatable. Heather had an allergic reaction (six weeks later) after taking Dilantin.
This was changed a week ago to Epilim which gave her tremours, weakness and very bad general tiredness. Up to this point Heather was doing great. She works three half days per week and kept going even during radiation treatment.
Anyway, the Epilim made her that ill that we consulted back to our neuosurgeon who sent us to a neurologist, another doctor.
He set the dose on the Epilim right, but also ummed and arred over the MRI's.
He sad very casusally "have you have a prognosis" We said no, and he said "you know it's not curable"?
Well our workd really fell apart and after calling the neursurgeon back, he did come clean and say that it is not curable and we would have 1-3 years before Heather would eventually die.
Please please please someone tell me that this isn't so, that there are long term survivors out there Heathers age. Ther is not a lot of alternative treatments available in Australia so we are really in the hands of our doctors. They have been great up to this point, but now we are in a new world of hurt and need some positive news from someone on the blog.