Dec 10, 2009 - 7:40 am
I was diagnosed two years ago when I was 25. There is no family history of bladder cancer. I was in pain for almost a whole year before I found out. I would bleed and dread going to pee because it hurt so bad. My primary care didn't think anything was wrong with me until I finally went to the emergency room. I had a CT Scan and suddenly nurses started hugging me until a doctor finally told me that I had a massive tumor taking up 3/4 of my bladder. I found the best doctor in boston and a week later, I had surgery that lasted so long, the doctor had to stop, come out and ask my mom if he should keep going or do a second surgery. My doctor said that you usually don't have symptoms and mine saved my life. I had stage one cancer and since then I've been getting cystoscopys every 3-4 months. He said due to the fact that I am so young, he didn't want me to have kemo or radiation. At the beginning of this year he saw a spot and lasered it off and said there wasn't anything to worry about. Well now he just found two tumors that are starting to grow. I am now 27 and I'm going for my second surgery. This time around he is going to remove the tumors and then coat my bladder with kemo. Hopefully this will help me go longer than two years. I just wish I could have more answers to all of this. Is it something we are eating? Is it the fumes from my paints? What, what is it? What can I avoid to prevent this from coming back? Luckily I have a great support team. I have a wonderful family and friends.