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Severe burn - cannot eat

NanseB
Posts: 17
Joined: Oct 2009

My mother finished her rounds of radiation and chemo two weeks ago. All seemed to be going great the last session of chemo really did her in. She says the pain in her esophagus if she tries to swallow is on a scale of 1-10 a 14. This is from a woman who has a real high tolerance for pain. Her doctor has given her liquid codeine as she waits to hear about a surgery date. She is down to 107 lbs on a 5'3" frame. It is scary to see her! She is feeding herself on the bag but says she can only take about 4 oz. every few hours. The concoction she makes for herself cannot be too thick or it won't pass through the tube. If the mixture is too rich (ice cream, etc)it makes her feel sick and vomit. Her doctor said she could check herself into the hospital and get into "pain management". I think that means lying in a hospital bed with a morphine drip? She won't do that.

Does anyone have suggestions on the following:
-How to manage or lessen the burn?
-What to put in the feeding tube? She currently uses a lot of Ensure, Boost etc.
-Just any stories of how to go through this phase in less pain.
-Anything really you feel will help

I read all of your posts and even though I do not write much, it really helps in the Hope department.

Betty in Vegas's picture
Betty in Vegas
Posts: 311
Joined: Jul 2009

Ask your mom's oncologist or radiologist. On the ACOR list this is called "magic mouthwash" it worked much like the stuff they use in the dentist office--numbing before the injection--only it numbs the throat and esophagus so you can eat. Layne only had to use his twice...but it was good to have around.

Why is she not on a liquid nutrient in the tube? There are things specifically MADE for the tubes.

chrisk06's picture
chrisk06
Posts: 114
Joined: Nov 2009

Betty is right. There are special nutrion formulas for the bags. Ask the Dr. about that. They are not too thick ot too thin.