Dec 07, 2009 - 11:29 pm
I didn't want this to get lost, so I thought I'd start your own message here. My husband did have IL surgery which sounds like what you are getting (though it could be THE) Everyone is different. At Md Anderson, all tubes but the feeding tube are out when you go home. Some places you have a tube or two left in.
Layne had his feeding tube only until his swallow test. Others have them a month or so. They are good to keep nutrition levels up when you are getting used to eating.
I would say that you should ask the docs, what is best in YOUR situation (surgery or no) and go with that. I would ask more than the surgeon though, I'd seriously ask my oncologist, as well. Surgeons like to cut.
There are those out there who have done well on no surgery. We opted to do it so we knew we had done all we could do. But Layne is young and had no other health problems.