Ouch!! My Scalp!!!

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Shayenne
Shayenne Member Posts: 2,342
edited March 2014 in Colorectal Cancer #1
The crown of my scalp is just killing me, is this normal?? or a chemo thing? I swear, I wash it, brush it, even leaving a towel on it to dry hurts it so bad. I do put my hair up sometimes, but haven't lately, because it's been hurting so bad, I was wondering, is anyone else's scalp really tender?

Hugsss!
~Donna
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  • krystiesq
    krystiesq Member Posts: 240 Member
    #2
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    My mom says hers hurts a
    My mom says hers hurts a lot, like creepie crawlies going under her skin. You're normal.
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #3
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    Shots
    If you are taking neuopgen shots or a booster for white blood counts that is what had my head hurting. It was terrible when I had to wash or brush my hair. Actually my whole body hurt from those shots. Hope you feel better soon.

    Kim
  • maglets
    maglets Member Posts: 2,576 Member
    #4
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    Annabelle41415 said:

    Shots
    If you are taking neuopgen shots or a booster for white blood counts that is what had my head hurting. It was terrible when I had to wash or brush my hair. Actually my whole body hurt from those shots. Hope you feel better soon.

    Kim

    scalp
    i had sore sore scalp and if I remember correctly both Nana and Sherrie did too..

    mine was xelox so do not know which drug did it but i think it was chemo for sure

    mags
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #5
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    I get that too
    Donna, I get that from CPT11.
  • Unknown
    Unknown
    #6
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    This comment has been removed by the Moderator
  • just4Brooks
    just4Brooks Member Posts: 980 Member
    #7
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    What a trip what chemo does
    I'm sure glad mine doesn't hurt. It sure trips me out on what chemo can do to a persons body. I have been cold for months!!!! just cant get warm!!

    Life is funny sometimes
    Brooks
  • ADKer
    ADKer Member Posts: 147
    #8
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    just4Brooks said:

    What a trip what chemo does
    I'm sure glad mine doesn't hurt. It sure trips me out on what chemo can do to a persons body. I have been cold for months!!!! just cant get warm!!

    Life is funny sometimes
    Brooks

    sore scalp
    Hi Donna -

    Yes, my scalp hurt from the CPT-11 (irinotecan). Unfortunately, it also meant that a large quantity of my hair was falling out. It does grow back - even while on the chemo.
  • butterfly23
    butterfly23 Member Posts: 256
    #9
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    ADKer said:

    sore scalp
    Hi Donna -

    Yes, my scalp hurt from the CPT-11 (irinotecan). Unfortunately, it also meant that a large quantity of my hair was falling out. It does grow back - even while on the chemo.

    Hi
    I don't know if you'd ever call me NORMAL! But I do have a sensitive scalp once in a while and it seems to be on the top of my scalp all the time!

    WEIRD!
    Karyn
  • Lilmiss82
    Lilmiss82 Member Posts: 257 Member
    #10
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    I feel that too
    I first noticed it when I was on 5-fu over the summer. I hated it because where my head was sore the next day it would fall out in that same spot! Now it's back and of course I blame the FOLFOX. So don't worry it's normal:)
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #11
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    had that happen too
    Hi Donna,

    Ouch, I just hate that! I had it happen too & am pretty sure it's from the irinotecan (same thing as CPT-11). Sometimes when it happened, my hair would thin out in that spot and other times the soreness went away without anything falling out.
    Now that I'm on this other treatment, I'm looking forward to my hair starting to grow back soon (I didn't lose it, but it definitely thinned out). I'll soon have more little spiky hairs sticking up all over my head through the rest of my hair!
    Hopefully yours won't fall out more, but you know that it will grow back again.

    Hugs to you Donna-
    Lisa
  • Shayenne
    Shayenne Member Posts: 2,342
    #12
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    lisa42 said:

    had that happen too
    Hi Donna,

    Ouch, I just hate that! I had it happen too & am pretty sure it's from the irinotecan (same thing as CPT-11). Sometimes when it happened, my hair would thin out in that spot and other times the soreness went away without anything falling out.
    Now that I'm on this other treatment, I'm looking forward to my hair starting to grow back soon (I didn't lose it, but it definitely thinned out). I'll soon have more little spiky hairs sticking up all over my head through the rest of my hair!
    Hopefully yours won't fall out more, but you know that it will grow back again.

    Hugs to you Donna-
    Lisa

    Thanks All!!
    Whew!! I thought it was just me, thanks for the replies all, I don't seem to be losing more hair, but for a couple weeks now, it's just been killing me. Hopefully once they stop the Irinotecan next month, it will get better!!

    Hugsss to you all!
    ~Donna
  • Nana b
    Nana b Member Posts: 3,030 Member
    #13
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    Shayenne said:

    Thanks All!!
    Whew!! I thought it was just me, thanks for the replies all, I don't seem to be losing more hair, but for a couple weeks now, it's just been killing me. Hopefully once they stop the Irinotecan next month, it will get better!!

    Hugsss to you all!
    ~Donna

    Yep
    I got that too, even the wind blowing it a different direction would make it hurt. Be gentle, right after that my hair started falling out.
  • Unknown
    Unknown
    #14
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    Nana b said:

    Yep
    I got that too, even the wind blowing it a different direction would make it hurt. Be gentle, right after that my hair started falling out.

    This comment has been removed by the Moderator
  • beachinmom
    beachinmom Member Posts: 73
    #15
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    unknown said:

    This comment has been removed by the Moderator

    Mine did too...on FOLFOX
    I remember that clearly. It did hurt in the first few weeks. Before/and during massive hair loss. It was that feeling of having a ponytail in for a long time and then taking it down...that is the only way i know how to relate it. But it was all over my head. hurt to do anything, even lay on it. BUT...it did go away. hoping it does the same for you!
  • Unknown
    Unknown
    #16
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    beachinmom said:

    Mine did too...on FOLFOX
    I remember that clearly. It did hurt in the first few weeks. Before/and during massive hair loss. It was that feeling of having a ponytail in for a long time and then taking it down...that is the only way i know how to relate it. But it was all over my head. hurt to do anything, even lay on it. BUT...it did go away. hoping it does the same for you!

    This comment has been removed by the Moderator
  • Holdtight
    Holdtight Member Posts: 151
    #17
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    unknown said:

    This comment has been removed by the Moderator

    H!
    Thanks for making sense out of the whole scalp ordeal. My scalp is killing me when I move my hair from one side of my head to the other I could scream and my scalp oils have a stronger odor. Chemo has its weird affects for sure. I really feel it after I get the neulasta shot. I don't know why but lately after my neulasta I've been so so tired - I feel worse than during the chemo treatment days. Does anyone know what could be causing me to feel so sick from this shot. I thought anything to boost the white count should be somewhat better but its making me worse. Hugs.
  • Shayenne
    Shayenne Member Posts: 2,342
    #18
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    Holdtight said:

    H!
    Thanks for making sense out of the whole scalp ordeal. My scalp is killing me when I move my hair from one side of my head to the other I could scream and my scalp oils have a stronger odor. Chemo has its weird affects for sure. I really feel it after I get the neulasta shot. I don't know why but lately after my neulasta I've been so so tired - I feel worse than during the chemo treatment days. Does anyone know what could be causing me to feel so sick from this shot. I thought anything to boost the white count should be somewhat better but its making me worse. Hugs.

    BINGO!!!
    Just like having a ponytail in too long!!! EXACTLY!!!!
  • eric38
    eric38 Member Posts: 583
    #19
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    Shayenne
    It`s that gigantic brain of yours. It`s crowding your skull.

    Eric
  • Shayenne
    Shayenne Member Posts: 2,342
    #20
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    eric38 said:

    Shayenne
    It`s that gigantic brain of yours. It`s crowding your skull.

    Eric

    HaHa!!
    Very funny Eric!! LOL!! At least a gigantic chemo brain is better then no brain at all!

    Hugsss and Love!!!

    ~Donna
  • KATE58
    KATE58 Member Posts: 299
    #21
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    Shayenne said:

    HaHa!!
    Very funny Eric!! LOL!! At least a gigantic chemo brain is better then no brain at all!

    Hugsss and Love!!!

    ~Donna

    I got sick after the
    I got sick after the neulasta shot as well.
    it started about an hour after.
    I'd be a little nauseous,and get a headache.
    it lasted a couple days.

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