Dec 05, 2009 - 8:14 am
I try to be tactful, but when I am worried about someone I get a little bolder. I am worried about you.
You said you are going back on taxol. My gyn Onc said she would use topocatan (I do not have the spelling, I am sure we can find it online) if I relapsed within eight months. I am not sure that is given with taxol but I think so.
What I don't understand about these chemotherapy regimens is that regardless of stage we are all given the same: six cycles of carbo/taxol. It would seem to me that for those of us with more than a stage 1a would need more chemo to start with. I remember Ted Kennedy's son getting two years of chemo with his leg cancer. And the biker Armstrong had quite a long treatment too I believe (He had met to brain).
What I am getting at is that we only know your CA 125 is up and you have a few enlarged lymph nodes. You were Stage III. Wouldn't it make sense to try a more agressive approach yet? Is it really time for salvage chemo yet? Perhaps you need a second opinion.
I don't mean to throw a wrench into your plans and cause you any more suffering. I am not an oncologist and certainly not a Gyn Onc. But my Gyn Onc is young and her response for treatment would be different from what I hear from you.
I apologise if I am sticking my big nose into your business. Perhaps if a gyn Onc would explain to me why everyone gets the same chemo regimen regardless of stage I would understand.
Please don't drop off the board. We are all living with cancer in one way or the other. I did it with breast for ten years. That mess could still recur but I have had ten wonderful years as I went forward anyway. Forgive me if I overstepped my bounds.