Dec 01, 2009 - 11:14 pm
Hello everyone. I was diagnosed on Nov. 5th with stage 3B lung cancer. Needless to say I am emotionally a wreck right now. I am only 28 years old and I have a 15 month old daughter and a 5 year old son. I have a very small tumor, in my opinion, 1.2 cm in my right upper lobe. I also have 4 lymph nodes in my mediastinum, right below where my airway splits. they are huge! The biggest measures 4.3 cm X 3.2 cm. I also have a supraclavicular node in my neck. PET scan shows no progression to brain or anywhere else. I am going to the UNiversity of North Carolina for treatment. My Dr removed 90% of node in my neck for a biopsy and to test for a EGFR gene mutation. Has anyone out there had the test and had it positive? Is anyone doing the clinical trial? I should have the results back next week. If it's not a mutation then I start chemo/rad combined immediately. Are there other young people with NSCLC and how do you cope? I really would love to chat with some of you and have a support group because right now I feel like I want to climb out of my body and run away.