Nov 30, 2009 - 9:53 pm
When I was going through radiation and chemo treatment for my anal cancer in 2008, I wish my caregivers would have had conversations with me about the whole me, not just my tumor they were working to rid me of. I had complications with scar tissue in the vagina, and though I was told that my husband and I should be able to have sex, it always inded with tears and lots of blood. Finally it was dtermined that I needed surgery to resolve the problem. None of that would hve had to have happened. I tried to talk about what was happening. The doctors were uncomfortable with the topic, and didn't broach it unless I did. After I brought it up, they would only say "it sounds like you're dealing with it, and have a good attitude, that's great". I wish the communication would have covered the whole me. I wish they would have asked about the rest of me. I felt more timid, less assertive during that time. I needed them to take the communicative lead.