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Dad considering Neobladder

yan4856741
Posts: 3
Joined: Nov 2009

My dad is 71 and has recurring bladder cancer after several bouts with BCG and Interferon....keeps coming back. His Dr at the University Hosp in Charleston SC is supposedly a leading urologist specializing in Neo's. I'd really like to connect him with others that have had the same procedure so he can get a realistic idea of what to expect and to ask some candid questions. I know he's worried about it even though he won't ask for help. Thanks to anyone that can lead me to some recipients.

K

Brian_A
Posts: 53
Joined: Nov 2009

I have no ideal who you are and I will give the Neo-bladder up and downs. I am far from your fathers age (32 here) but I would be more than happy to answer any ?s for you or your father. It has only been a year since my surgary and the Dr. says I need more time to heal but it me telling him what I am going through and how thigs are working or not working will help tell him to call me. I may be some different because I had my prostrate removed at the same time. I know this may be a bad thing to do but this stage in life I do not really care but my cell number (for last 10 years) is (270)789-7739. He may be feel indifferent talking to me since he may think I am a kid and as I said it has only been a year but I am a great talker. I seen u said yall were from C.C I believe and I am from KY (go big blue) lol.

olddukey
Posts: 4
Joined: Dec 2009

How are you doing and what is the prognosis at one year??
I also have friend with bladder removed over 4 years and new one made from small intestine and he seems to be doing great.
either here or at olddukey@gmail.com
john
I'm on because of Prostate Ca and Ive done the drugs intermitently for 18 years and counting.

jclarey
Posts: 2
Joined: Nov 2009

There is an active bladder cancer discussion group at:

http://listserv.acor.org/SCRIPTS/WA-ACOR.EXE?A0=BLADDER-CANCER-CAFE

The people there are very helpful.

and a good website at:

http://blcwebcafe.org

Good luck,

Jeff in Wisconsin

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