Nov 22, 2009 - 12:41 am
I'm new to this board..my husband was diagnosed with stage 3=4 depending on who you spoke with...in August. was misdiagnosed lst time around...his treatment since he had a maglinant subclavical lymph node was chemo and rad...which he completed October 9th..his treatment took place at the U. of Chicago..IL...he was in a clinical trial and was selected for the experimental use of erbitux...lst CT was clean after 2 weeks..endoscopic ultrasound showed a clean, clear espohagus with a lymph node on a gastric ligament which the dr who did the scope said..not to worry about along with the cytoligist...they'll be biopsed.
Surgery is not an option for him...
Pet scan will be Nov. 30th with the appt with the oncologist on Dec. 4th..
It's been a horrendous period...and now there's a lull...he has no trouble swallowing, never did...
This is such an awful cancer...I expect that we'll be forever looking over our shoulder and without surgery there isn't much chance from what I have read.
My husband made all the choices after doing no research whatsoever..I just bowed out..so it won't be my fault if it all goes wrong.
My psychologist says the spouse with the cancer must take ownership...I'm a Fixer and he's an Avoider...I tackle the problem while he pretends it's not there...but now I don't try to fix a thing..nor do I do anything special in any way...it's not an option here.
I had 3 knee replacements in 2 years one a revision and managed to do all I had to do..which was a lot and it's the pits...I figured he can figure out his meds.
My psychologist says it's tough love...he also sees my husband in his support group..
I have learned that Now is important and not to worry about problems I can't fix and I can't fix his cancer...