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Ahhh we found his kryptonite!



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Betty in Vegas's picture
Betty in Vegas
Posts: 311
Joined: Jul 2009
November 17, 2009 - 9:50am

Well, it's milk. Being the smartypants that he is--while I was gone, Layne decided to have not one but TWO glasses of milk instead of introducing it slowly as he was told to do by the docs.

And he spent last night in the bathroom. :) Dumping.

He has promised to be good henceforth.

Doing well, drainage on the incision easing, he is less sore each day, and is hoping to start getting back in the loop on work by the end of the week. (Just a couple of hours a day...more guiding than doing, to keep him mind from turning to mush.)

Yesterday we went to Whole Foods and Walmart, and he did very well. It was cold here, so it gave him somewhere to do his walk. I have to get a new treadmill for him if this continues, as he really is not going to be able to walk in the winter because he now feels cold. (He NEVER was cold before, even in the dead of winter, wore only a flannel shirt or something similar.)

I am amazed how good he is feeling. I hope that his case gives hope to those who wonder how the surgery will affect their life. Well, it's surgery, so it is no fun, but he is enjoying his recovery time, spending time with me and the boys--laughing and being together!

WilliamWMarshall's picture
WilliamWMarshall
Posts: 1968
Joined: May 2003
November 17, 2009 - 10:41am

Hey Betty,

Loretta and I howled with laughter when we read your letter about Layne's "Kryptonite"!

When the "mouse is away, the cat will play". I've reversed this order because cat's so love milk. Loretta prefers the nicer sounding word "diarrhea" instead of the more violent sounding word "dumping", but the terms are synonymous. You could say about Layne's 2 glasses of milk--"two glasses in--two glasses out" and I mean "in a jiffy".

Seems like he could have listened to my advice about going easy on milk and ice cream. Now you must also "hide the candy jar". I'm like a kid in a candy shop. I love sweets and ice cream. And now that I'm 72, I can eat my dessert FIRST!

Now Layne must also watch CHEESE. All these foods taste oh so very good going in, but like I said, "my body talks back". Oh yes, we survivors, have "talking organs". Layne is finding that out. His eyes see the food, his mouth waters, his stomach growls, and the tussle begins. But the intestines get the last laugh. The intestines may be the last to "eat", but he takes a lot longer to "expel" the food than the eyes, taste buds, and stomach took to "consume" it.

Now a word to the wise is sufficient. Looks like Layne has to "learn the hard way". By the way, some over-the-counter "Lactose intolerant" pills will help greatly (preferably taken before consumption of milk and cheese products). Furthermore, milk and cheese can create excessive gas. The reaction can be very soon afterwards, so Layne should not gorge on milk and cheese and then expect to be a "welcome guests" at parties--if you get my drift. He will be anything but the "life of the party". Sometimes this has happened to me when we are out shopping. I always try to pretend it is not me expelling gas, but I really know it is. Meanwhile, Loretta escapes to another part of the store, pretending we don't know each other.

Layne is making a miraculous recovery, just like I did. I told you Loretta had me downtown shopping in no time.

May I offer a suggestion as to why Layne is now feeling the cold. He no longer has the extra coat of blubber, pardon the expression, that he once wore. Surely you remember the word to parents to keep their children properly clothed, because their skin is much thinner than that of adults. They will get chilled more quickly. (We often gasp at the way young parents let their children play out in the cold without adequate wraps on.) So now, Layne will have to put on a coat when he takes his walks. A great price to pay for being a "Cancer-free Survivor"!

A great testimony. We are so very happy.

William W. Marshall (&Loretta)
AKA "William66"
Virginia Beach, VA 23464

P.S. Have you considered buying a 4 oz. baby bottle and doling out the milk to Layne in "dribbles"--forcing him to drink through the nipple of course? Looks like when Betty's away, "the cat, the mice and Layne will play!

mumphy's picture
mumphy
Posts: 489
Joined: Jun 2009
November 17, 2009 - 2:54pm

Hi Betty,

First of all I am so happy that Layne is doing so well, as you know we had our little set back with the pneumonia.. Al is doing fine now and is eating pretty good. He hasn't had a problem with milk products at all at least not yet and hopefully not ever he loves milk.

In regards to Layne being cold so is Al it is still left over from the chemo at least thats
what the told me. His feet especially are cold all the time.

I gave Al his list of foods that he can and can not have and told him what would happen if
he didn't follow it and if he doesn't then he will have to deal with what happens when you dont follow the rules.

I thing Layne has learned his lesson.

God Bless
Kath

MOE58's picture
MOE58
Posts: 656
Joined: May 2009
November 17, 2009 - 9:19pm

Betty,

Isn't it fun, when they spend the night in the bathroom when they don't listen to what the doc said, I too had to laugh as we have had several nights in the bathroom jeff takes the paper and its there until he finishes his dumping ha ha, glad he is so much better, I know in reality he will even get better, Jeff has had a few set backs but we will make it. Just know now you are a survivor of EC CANCER, be sure and help others, and like William said, they love candy, Jeff's taste buds sure has changed since surgery wants to eat pickles olives, and popcorn all the time, I always ask him when the BABY IS DUE, he just laughs I swear he is like a woman pregnant and craving pickles I had to go to our little convenience store the other night to just get him pickles I felt like he was pregnant, too funny, Jeff too is always cold, where before he complained it was too hot in the house, and now he keeps it warmer than I like.

BETTY, MUMPHY, WILLIAM, DONNA70, AND K_ANN AND OURSELFS have everything in common something to be thankful for this THANKSGIVING.

Keep in touch and watch the milk

Lori aka MOE

WilliamWMarshall's picture
WilliamWMarshall
Posts: 1968
Joined: May 2003
November 17, 2009 - 11:30pm

Hi Lori -

Just thought it interesting. Chemo has some side effects that seem to be common with several patients. I, too, like Jeff, craved vinegary things for quite some time during and after the chemo. That subsided with time, but you just sparked my memory. Also during the time I was taking the chemo, Loretta's food had a "burnt" taste, but I ATE IT BECAUSE I was HUNGRY. She said, "There's nothing wrong with this. I cooked it the way I always cook it and I'm not cooking anything else, because you're saying that about everything!" Guess you know who won that argument. The cook! I didn't lose any weight until after the operation and my taste buds improved rapidly.

You know we hear the saying so much, "Today is the first day of the rest of your life!" But with EC Survivors, every day is a day you thought you might never have! I haven't gotten over the fact that all this ever happened to me.

Loretta and I rode down to Sandbridge Beach today to see the huge barge laden with a full load of containers filled with chemicals. (Incidentally, anyone wanting to enjoy the beach should rent a home in the Sandbridge area. It's just a little further down the beach from the main tourist area. It's basically private homes with only one little grocery store, a firestation, some realty companies, etc. But if you want a quiet place to enjoy the Atlantic Ocean, Sandbridge is the place to go.) Anyway, we went down to Sandbridge because that's where the barge is stuck. The barge is 3 floors deep. It's as long as a football field. It is very close to the fishing pier and that's one fear. There are 3 tug boats trying to dislodge this barge at high tide. So far they have moved it a little sideways. You have probably seen it on the news. Ida sure left her mark here at the beach.

Anyhow, on the way down I told Loretta, "Do you suppose I really didn't have cancer after all?" "I can't believe how good I feel". She said, "Oh sure the doctor just put us to all that trouble so he could make a buck!" "Don't be crazy." I am constantly amazed that I feel as though I never had cancer. I hope that is the way each one of the patients that are now recuperating will soon feel. Every day is Thanksgiving Day once you've survived Esophageal Cancer. Happy Thanksgiving to you as well. Jeff's another miracle!

William W. Marshall (& Loretta)
AKA "William66"
Virginia Beach, VA 23464

JaneE2366's picture
JaneE2366
Posts: 336
Joined: Jul 2009
November 18, 2009 - 10:00am

William, just have to tell you Sandbridge was our favorite beach to go when we would visit our friends in Chesapeake. Loved flying our kites there.
Jane

mumphy's picture
mumphy
Posts: 489
Joined: Jun 2009
November 18, 2009 - 4:42pm

Sandbrige sounds like a nice place to go next vacation season. Al should be fully recovered by then.
Kath