Nov 14, 2009 - 1:10 pm
Claudia, I didn't get alot of info. Doc in a hurry!! But he is very "science-based". He would not order any treatment unless indicated. He did say there are "lots of treatment options" if recurrence. Small consolation.
Patricia. I didn't ask the lymph node question. Sorry.
I did learn that the CA125 is NOT a reliable marker (at least for me) if it is LOW. But it can be if it is high. I guess the logic is - high says problems. Low means essentially nothing since there could be problems and it's not showing up. Great - so I can no longer really be happy with my low ca125 numbers - it was 11 - up from 10. And since my doc doesn't believe in the routine CTs because of radiation, he is relying on my self-report as his best indicator of recurrence. Reading Fran's advice for us to get scans at least every 6 months - this is scary for me. I will probably ask for a scan next visit - 4 months away.
Again, my crapshoot theory seems to be holding up!! Mary Ann