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Back again with news on John

RevLee
Posts: 50
Joined: Jul 2009

Time seems to just slip by me anymore. I had to take about an hour to catch up on all the postings.
John is now 6 weeks out of his 5 weeks of chemo/radiation. He still has soreness in his esophagus from the radiation, but is able to eat better. He sees the medical oncologist tomorrow after having the followup PET and CT scans. He has an appointment with the surgeon on the 16th, and, hopefully, surgery will be scheduled. They normally do not like to go longer than 8 weeks after the end of treatments, but that is Thanksgiving week and I doubt if they will operate that week. John is a little anxious and wants things moving again. He still has some bouts of fatigue, but is much better all around. He has now lost about 110 pounds. Thankfully he was a big guy to begin with (365 pounds), but they do not want him to lose anymore weight since he is 6'4" tall.
At the esophageal cancer support group at Fox Chase Cancer Center, a woman, whose husband has esophageal cancer, was talking about how he did not like to go out when he was on the feeding tube. She decided to design a 'belt'. I think this is phenomenal since I am not creative at all. She designed a belt, like a fanny pack, that holds the pump and the food. This way the person can go out and about. John will be one of the first ones, other than her husband, to use it. She has started a foundation to make these and the proceeds will benefit Fox Chase. John and I have no idea of what the feeding tube is all about, but the other people in the group absolutely loved her idea. So, we shall see. This group has been a life saver for John since he gets to see and talk to so many survivors.
I want to take a minute to thank all of you for answering a lot of my postings. It has really helped to keep me upbeat, faithfilled and focused!
Lee

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