Nov 07, 2009 - 9:08 pm
I was diagnosed Sept 15th with Esophageal Cancer and since started treatment. They put me in the hospital for 7 days while they did 5 days of 5FU (16hrs a day) and then Cisplatin for a day (8hrs). During that time I started radiation as well which is scheduled for 6 weeks. I will be admitted back to the hospital in the last week for the same round of chemo.
This is my issue:
Since getting the Cisplatin on Monday evening I have had no appetite. I try to eat but food just does not taste good and what I can get down seems to fill me up really quick. I did not have nausea at all during the chemo or afterwards thanks to Emend but did have the funky metal taste in my mouth.
The other part of this is that I do have a feeding tube (no pump) but am having issues feeding with that as well. Initially my nutritionist put me on Nutren 2.0 but this caused me to have the "Dumping Syndrome" - rapid heart beat, nausea, forced going to the restroom, extreme fatigue afterward. I tried vanilla Ensure, same thing. Finally landed on Strawberry Ensure before going into the hospital 2 weeks ago. I was able to get down 3 cans a day while there.
Since being out I am having near "Dumping Syndrome". If I take a whole can my heart beat goes way up and I am wiped out for 1-2 hours afterward. I tried cutting it by 50% with water and that only wipes my out for about an hour (still have high heart rate). I think I have narrowed it down to the fact that Nutren and Ensure both have too much dang sugar in them. I am not diabetic but I guess that is what it would feel like.
My radiation nurse gave me a can of Jevity 1.5 to try but I have yet to experiment with it.
So here is my deal...
In my mind you do not have to convince me that I need to eat. In my mind I know that and I want to. My body does not though and is fighting me all the way.
What do I do?
I have a pretty good perspective in regard to the overall treatment plan and I believe that I am going to beat this. But, I know that I need nutrition in my body to do so.
Any help would be greatly appreciated.
P.S. One final note. I am anemic and my hemoglobin's are around 8 right now and should be around 12. My Oncologist is setting me up for weekly iron IV starting next week to boost this up since my digestive system is not absorbing iron due to the cancer. Do you think this has anything to do with it?