CSN Login
Members Online: 12

Pros and Cons of Removing All lymph nodes in the left groin area

sg8856
Posts: 1
Joined: Nov 2009

I'm a healthy female, married. I was recently diagnosed melanoma and had three sentinel lymph nodes removed from the groin area of my left leg for biopsy test. the result came out that one node was positive and the other two were negtive. My surgeon recommended to have the complete lymph node dissection to removed all the nodes in left groin area. The surgeon did mentioned some of the side effect such as lymphedema. I would like to learn from others experience.what was your experience of having lymphedema after removing all the lymph nodes in the groin regin.

I highly appreciate for your input and thank you all.

Lwallace121
Posts: 1
Joined: Feb 2010

Actually I'm going through the same (diagnosed & they took a fee lymph nodes from groins & behind right knee) I'm sort of researching the same so if u find anything...let me know :) thanks

dolphin52865
Posts: 1
Joined: Jun 2006

Hello, I had several lymph nodes removed from my right groin in 2005. I did the proper follow ups over the next several years. In Sept 2008 a CT scan found out that my melanoma had come back to several lymph nodes in the right groin and to my liver. I asked the doctor if we should take the rest of my lyph nodes out of my right groin. I was told that if I did my lymphedema would get worse. The leg could end up with elephantitis. I even asked about radiation and they said that it would kill the good and bad tissue in my groin area and that would make my lymphedema just as bad.

My right leg is always bigger than my left. At times it swells up and turns very red and hot. I even get a low grade fever once in awhile and have to take antibiotics. I take a water pill everyday so the fluid doesn't sit in the leg. I walk and exercise as much as I can.

I hope this helps you.

Bill58
Posts: 1
Joined: May 2010

i had a tumor removed from my left thigh in April 2010. The sentinal node biopsy took 6 lymph nodes, 5 positive. all doctors agreet that additional surgery to remove more lymph nodes was required. Will undergo procedure on June 10th. They will remove a few lymph nodes until they get to one of the main ones (forget what name they called it). If that one is clean, they will stop. If it is positive, they will dig deeper. They want to remove as few lymph nodes as possible. I am concerned about the lymphedema and will have to deal with that if and when it happens. Have not decided on the follow up treatment after the surgery. Interferon for 1 month 5 days per week and then 11 months is one option. IPI... is another option. there is a trial out of NIH in bethesda that is another option if my blood type matches. Hoping for a match at NIH and possible high success rates of non-recurrance.
keeping my fingers crossed.

washoegal
Posts: 45
Joined: May 2010

Good luck Let us know how you do. I hope you qualify for the clinical trials. I opted not to have any Interferon. But I had only two sentinel nodes positive for cancer and those had a very small microscopic amount in them. I did have all my lymph nodes removed from under my arm though. All were clear, and of course now I am second guessing the decision to take all the nodes rather just monitor which was another option offered. Lots of lumps and bumps going on but able to do pretty much what I as able to do pre-surgery, 3 months later.

Each one of us has to make our own decisions, for me it was a trade off of 1 year of feeling lousy versus a small improvement in the odds. I was hoping to get things done and over with. I guess cancer just doesn't work that way.

Once again good luck.

mh1229
Posts: 22
Joined: May 2010

I had 13 nodes + the sentinel node and have had no lymphedema past the 1st week. Mine is my right groin. I have had numbness in my big toe. Sometimes it just itchy or tingly. It is a nerve thing and may or may not resolve.
I am 31 and female. Before surgery I did ask if there was a certain population that were more likely to battle lyphedema and he said being young and active was in my favor.
Melanie

Meg1414's picture
Meg1414
Posts: 3
Joined: Aug 2010

I had most of the lymph nodes in my left groin area removed. Only 1 tested positive. I think, though, that it was better for me to trust the doctors and be sure it was gone. I also did the interferon for a year. For 2-3 years, my leg was fine. Then the lymphedema kicked in. It's something I'll have to deal with for the rest of my life, but they have good therapists now and I sleep in a "night garment" which is an amazing thing. Because of that, my leg is good most of the time. Heat makes it worse, and once I had a 26 hour bus ride that made my leg huge! But it's something that I've learned to keep under control. When I start to whine about my "puffy leg" I remember that I'm still here. They gave me 18% odds of making it 5 years, and I'm on 8 and still going. And I don't let it stop me from doing things I like. I just joined roller derby about a month ago. :) So, if you did decide to take them out and you do end up getting lymphedema, don't let it stop you. You can get lymph massage and compression socks and sleep in a boot like I do, and life is basically no different. Wishing you all the best!

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network