I posted before under 17 year old daughter. We finally got the pathology back on her tumor (removed with her right kidney on Oct. 15) and this is what they have diagnosed her with. She is preliminarily staged at T2 NxMx. So, I think until we get to an oncologist, we won't know further if it has spread or not. Has anyone here had experience with this type of kidney cancer? Apparently it has something to do with the translocation of chromosomes/genes. There is not much information in the internet. We are in Orange County, Southern Calif. We are considering taking her to UCLA, Ceder Sinai or City of Hope Medical Center. Does anyone have any input on these places or good oncologists in So. Cal?
She is recovering pretty well from surgery. It's been 2 weeks and she is off all pain meds except Tylenol. She is considering going back to school next week, but we don't know how she can sit at a desk. Her incision is becoming more painful. It looks good, no infection, but I wonder about nerve endings? We are having difficulty, because of her age, it is emotional and she feels like no one understands and she misses her friends and activities.
Thank you all in advance for any help. There is some wonderful advice on here and I'm glad to be able to learn from you all.