Oct 26, 2009 - 12:48 am
Our granddaughter, Maya Jones, was diagnosed on December 24, 2008 (age 2) with "adult" fibrosarcoma in her upper right arm. Had chemo that did nothing (tumor was 100% alive when taken out April 1st), pre and post-op radiation. Clean but not wide margins. No metastasis at diagnosis, but the tumor was, according to the surgeon, deep, aggressive and large. (It wasn't all that large, but when you put it in a two year old's arm, it sure seemed big - nearly 5 cm). I can't find any other children with fibrosarcoma. Only one girl in England some years ago who had fibrosarcoma on her spine.
would love to find other families who have a child with this type of sarcoma.
Thanks for passing the word along anywhere you know...