Oct 15, 2009 - 7:24 pm
I am 39 years old. I am Asian. I was diagnosed with advanced HCC in November '08. I had a 9cm tumor in my left lobe and multiple lesions in my right lobe. I had two Therasphere treatments (one in each lobe) and two chemoembolization(TACE). Each treatment proved successful in destroying the tumors and eliminating them entirely. However, new tumors continue to show up on my CT scans. MY current AFP is approximately 3400. I tried Nexavar in early August and was on the drug for seven weeks, five weeks at full dosage. However, it gave me side effects such as blistering in my hands and feet, severe abdominal pain, and fatigue. It did not help me. In fact, it seems my AFP went UP with Nexavar not go down! Right now, I will receive my last Therasphere treatment this Monday, October 19th. After that, it will have to be clinical trials. I have read articles from doctors in Asia who have done many Living Donor Liver Transplants (LDLT). I am hoping that I could possibly be a candidate if I can stabilize the tumors. My focus is now seeking a new drug to help slow tumors from growing. Does anyone have any idea what drugs I can try? I heard of Sutent and Avastin. I will need to check with my doctors at UW Madison. However, anybody who have any experience with these, please let me know!