Oct 05, 2009 - 8:46 pm
Hi, I've been reading this forums for two weeks now and I've cried quite a bit reading these forums. I finally have found the strength to post so here is my current story (10/5/2009)
My name is John and my mother is 63. Two months ago she had an attack of sepsis that sent her to the hospital where we found out she has stage 4 uterine cancer that has also spread to her stomach (muscle area). The doctors she has seen say its inoperable and , eh, if we want - chemo for palliative purposes.
At this hospital, She had a dose of chemo for a few minutes but it caused her pain and they stopped it. She was there for 30 days and did not eat much and did not walk at all. It is a local hospital and they gave her zero physical therapy.
I moved her to a bigger hospital, one of the best in the city, but not a designated cancer center. They were nice there, but the insurance blocked them from giving her chemo and made claims about she could do it outpatient while she is in rehab. She was shuttled off to a very nice rehab center.
I was pleased with the rehab center staff, but much to my chagrin - I found out a few days later that there was zero setup for her to go do chemo anywhere. I felt like I had dropped the ball and kicked myself. I looked into what to do next and my mother was making progress toward walking when all of a sudden she couldn't do physical therapy. She was weaker than ever. I called the Doctor and now she is currently in the hospital with another blood and urine infection.
She has lost tons of weight and does not want to eat and is still bed ridden going on 60+ days. Everyday I am shocked into crying as I watch the food consumption wane to almost nothing. The tumor is starting to press on her other organs and cause pain and health issues (I.E. urine infection/sepsis )
I'm an only child and there is so much to do as a caregiver and maintaining both our worlds and of course I am overwhelmed and kicking myself that I messed up at certain junctures as precious time slips by.
My thoughts in my head is to try to get her chemo somewhere where doctors will take a look at her here in NY,NJ area and try everything I've read on these boards for books, holistic approaches to go along with it. It's confusing to know what to do and I wonder how so much time has past and she never got another shot at chemo or any other treatment.
Thank you for taking the time to read this. If anyone has any ideas on what I should buckle down and do I am open to listening to all.