Sep 25, 2009 - 7:04 pm
My 6 year old has one of these growing in her pituitary gland, She had about 95% of the cyst portion of it removed last may via surgery. She's a rare case where the pituitary gland is still functioning and we've been holding off on radiation which will destroy it for certain. We're thinking about proton therapy at MD Anderson located in Houston or Possible more surgery and gamma knife locally. Anyone have any experience with proton therapy at MD Anderson or anywhere for that matter?