Sep 15, 2009 - 9:01 pm
In the medical community everyone wants to keep your spirits up and hopes up. I don't feel they always tell you what you will probably go through.
I know everyone reacts differently to treatment. I'd love to hear from those that have been on FOLFOX or are on it now, about your side effects, and how severe or not severe they are.
I run my own business, and my daughter just informed me that this semester she is overloaded and won't be able to work for me as planned. My other daughter is moving to Australia for a year in a few weeks (been planned for many months). They are the only two that have ever worked for me. My boys are too young to work for me. Right now I'm not organized enough, nor do I have enought time to train anyone else to do what they did for me. (While I didn't have emergency surgery, it was basically - I found out Monday night that I needed it ASAP, and was scheduled for Wednesday AM.) And I don't want some stranger coming into my home (home office) while I'm going through this, and don't know how I'll react. So I am hoping to make it through the next 6 months working full-time+. I am able to be flexible with my hours, and realize that I cannot realistically work my usual 60+ hour weeks, but I need to be able to work as much as possible.
For those of you with FOLFOX experience, please answer the following questions if you don't mind sharing:
What part of the cycle was the worst? The days hooked up, or later?
And the other piece here too - nueropathy. Did you have trouble from the Oxaliplatin? How severe? For someone that needs to type a lot, is it an issue?
Anything else you want to share that you think would be helpful as far as my expectations for side-effects. I hope for the best, but due to my situation, I need to also plan for the worst. That is hard to do if everything has been sugar-coated.
I know I've asked a lot. It would be helpful to hear from real people about their experiences, rather than just read a list of what side-effects I might get, and listen to reassurances that they'll do everything they can to minimize my discomforts.