Aug 13, 2009 - 4:24 pm
hi. i am very new here. i was recently diagnosed w/ paraganglioma.i underwent surgery on 7/31/09 to remove what we all thought was a very bad canerous thyroid. the cancer attacked my vocal cords,trachea,esophagus and knocked out 2 of my parathyroid glands,along with of course my thyroid. it was over 4 inches long.it was sent out to be tested and came back as paraganglioma. my dr. didn't beleive it so he sent it out again. now that we are sure what it is ,i'm having difficulty finding any kind of info about it. i do know that it usually attacks the carotid artery and adrenal glands but so i have none of that. nobody knows why it settled for my thyroid. i am going to have a full body cat scan and mri tomorrow to see if it is anywhere else in my body and to make sure my dr. got it all;next week getting fitted for my mask and probably start external radiation the week after that.i probably don't have to say how scared i am of all of this. i am only 44 and always thought my biggest medical problem would be getting diabetis after 40.if anyone can help me,please do and if you need anymore info,i will try to answer the best i can.thanks in advance for any help given.