Problem with contrast after mri

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infoneeded
infoneeded Member Posts: 23
edited March 2014 in Caregivers #1
My husband is having a reaction to the contrast when he has mri's. He can feel the injection going through his leg muscles and then has tightness for up to three weeks. It takes away the strength in his legs and causes pain due to the tightness. He has brain cancer and has to have the contrast. His doctors have never heard of this happening and have been trying to find a docter that knows of this kind of reaction. He had a mri two days ago and followed protocol for allergic reactions to contrast but it didn't work. Now his legs randomly shake as if he is having a seizure.

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  • SonSon
    SonSon Member Posts: 174
    #2
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    Sounds Neurological...
    Have a neurologist look at your husband's case.
    My first impression was allergy - but if they ran the protocol it seems that it was ruled out already.
    Fatima
  • infoneeded
    infoneeded Member Posts: 23
    #3
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    SonSon said:

    Sounds Neurological...
    Have a neurologist look at your husband's case.
    My first impression was allergy - but if they ran the protocol it seems that it was ruled out already.
    Fatima

    His oncologist is a neuro
    His oncologist is a neuro oncologist. Thanks for the suggestion. I just keep hitting brick walls. I can't even find something online. We ask any doctor we come across and so far nothing.
  • sue Siwek
    sue Siwek Member Posts: 279
    #4
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    infoneeded said:

    His oncologist is a neuro
    His oncologist is a neuro oncologist. Thanks for the suggestion. I just keep hitting brick walls. I can't even find something online. We ask any doctor we come across and so far nothing.

    are you at a teaching
    are you at a teaching hospital? you should ask for a second opinion or possibly your husband is having psychological problems with his diagnosis, WHO WOULDN'T! insist! and don't let up they work for you.
  • infoneeded
    infoneeded Member Posts: 23
    #5
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    sue Siwek said:

    are you at a teaching
    are you at a teaching hospital? you should ask for a second opinion or possibly your husband is having psychological problems with his diagnosis, WHO WOULDN'T! insist! and don't let up they work for you.

    Yes we are at a teaching
    Yes we are at a teaching hospital. I actually thought about it being phsycological. I am waiting to here from the drs office. They seem to be concerned and want to find a solution. I always figure this site has much more information than drs.
  • newbride
    newbride Member Posts: 142
    #6
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    What are they using for contrast?
    I found the following link you might want to check out - I just copied a small section from the link -- but look at the last sentence under what is nephrogenic systemic fibrosis. You might want to ask the doctors about this. Not sure if it is related or not but it's the closest I could find about muscle weakness and MRIs http://www.schmidtandclark.com/gadolinium

    Gadolinium Based Contrast Agents have been linked to a serious, life-threatening skin disorder called Nephrogenic Systemic Fibrosis (NSF) or Nephrogenic Fibrosing Dermopathy (NFD).

    What is Nephrogenic Systemic Fibrosis (NSF)?
    Nephrogenic Systemic Fibrosis (NSF), also known as Nephrogenic Fibrosing Dermopathy (NFD), is a skin condition that is often described as a swelling and tightening of the skin, usually limited to the extremities. The condition may develop over a short period of days or could take weeks to fully develop. Severely affected patients may be unable to walk, or fully extend the joints of their arms, hands, legs, and feet. Complaints of muscle weakness are common.

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