Aug 05, 2009 - 3:24 pm
Looking for anyone that has been treated with a chemotherapy drug called "Lomustine" or CCNU.
My 30 year old wife just had her second surgery to remove an anaplastic astrocytoma tumour (assuming it is still grade 3). She was diagnosed in 2006, followed by radiation and chemo. In 2006 she was on the temodar. After 3+ years the tumour came back, same location, slightly larger but deeper. The surgery went well, removed most, and the only other thing we know so far is that she will be treated with lomustine this time.
I have done little research on lomustine so far, but from what I have seen, it sounds like the side effects should be fairly similar to the temodar. The thing that I wonder about is we were told not long ago that temodar was the best thing for brain cancer. Does that mean they used the best the first time and now that the tumour had returned they will use the second best?
Again, before we get started with the treatments, I am just hoping to hear some real life experience with lomustine, as apposed to the generic information found on the common brain tumour sites.