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How Many Men are actually CONTINENT 6 weeks post-op???

fishing_fool
Posts: 18
Joined: Apr 2009

From the posts on the board it dosen't sound like the odds are great!. I would really like to know how many of us have had the surgery - lets say giving 6 weeks to heal and are actually continent. AND are the ones continent also not having E/D issues? Gleason 3+3=6 Surgery scheduled Nov. 9th, DiVinci. Thanks, AJ

Here is an interesting article I came across! http://www.healthlibrary.com/news431.htm Are the doc using this method?

abfbob
Posts: 8
Joined: May 2009

I dont know your age, but I'm 45. I had my cath removed last Friday and neither problem has been an issue for me,other than a little bit of dribble from coughing sneezing or getting up to fast from sitting position.Other than my age I feel it was the surgeons extra time and carefulness that was the differance.My surgery lasted longer than others I've talked to.My scores were the same as yours,so dont get discouraged.Good luck,Bob

segersales's picture
segersales
Posts: 11
Joined: Jul 2009

hi, I was fully continent 4 weeks after surgery. Once in a while I have to control the urge, but I've been fortunate. Also, had 38 follow up radiation treatments. Bladder still good. Sex still works

ismetals's picture
ismetals
Posts: 70
Joined: Feb 2009

I have had virtually no problems with incontenance since about 6 weeks after surgery. It's been ten months now and incontenance is only a minor problem if I use too much alcohol. If I'm going out for a party I sill use a pad but at the end of the night it is usually guite dry. I only had one nerve bundle spared so ed is still a problem. I'm 60 and with effort things work well. Believe me, a great partner is what really maters. Good luck and keep up the fight towards a full recovery.

Bill_4's picture
Bill_4
Posts: 29
Joined: Jun 2009

Hello,
I just came through surgery 10 days ago and had the catheter removed 2 days ago. I was continent from removal. I have had an ache every time I urinate. I feel that it's just part of the healing process. For the time being, I have to think about whether the bladder needs emptying and have to think about getting the stream started. Those natural processes/sensations for me have to be helped along at the moment. I guessing continence, pain resolution, and potency are determined by so many things unique to our age, health, surgery, luck of the draw and so on. Best wishes for your treatment and recovery.
Bill (age 60)

JR1949
Posts: 230
Joined: Jun 2009

I am 60, my PSA was 22, Gleason 7, radical prostatectomy 6 months ago. My incontinence is still a problem. It is better but seems like I take 1 step forward and 2 steps back often.
I still wear adult diaper and pad, change pad average of 3 times a day. Learned that any caffeine was a no-no early. I am up during the night an average of 3 times still and wake up with dry pad, but during the day I rarely get the sensation that I have to pee. I have tried to make myself go every hour or so but forget about it sometimes. I have been taking Vesicare for 2 months and it helps. I have started kegel exercises and that helps some too. I suppose my healing will just take a while.
Don't know if my type of surgery is the reason my recovery is taking longer than some of you guys. Any ideas on this?
Still hopeful in Tennessee.

lewvino's picture
lewvino
Posts: 1007
Joined: May 2009

So sorry to hear that you are still having problems. I'm 54 and just had my robotic surgery on Aug. 12th. I have been 100% dry since the day they pulled the catheter. No drips, no dribbles, No pads. I wish I knew what the magic secret was but am just Very happy.
Good luck and I wish you dry days in the near future.

Larry

novaguy
Posts: 76
Joined: Jul 2009

I had da vinci a month ago and was continent right away from when they removed the catherer. But I think those of us with immediate continence are the exception. It's probably 1/3 the doctor, 1/3 the patient, and 1/3 luck.

lion1
Posts: 240
Joined: May 2007

Well who really knows why for anything--Incontinent 3yrs 3months. 49yrs old---way too young.

Erections good, better with Cialis.

If you are continent in 6 wks after surgery----you are truly blesed!

Lion1

CaptnJack1744
Posts: 2
Joined: Mar 2010

A scope, 6 months after Old Fashioned Radical in 2000 revealed that the surgeon had damaged the sphincter. After YEARS of bladder neck collagen helping, radiation ended the effectiveness. Had an artifical urinary sphincter AMS800 implanted in 2008. It works great.
FYI University hospitals are far more "current" than the local Urologist

Trew
Posts: 892
Joined: Jan 2010

Excellent insight- thanks for sharing that info. I may need it. I can not leak and backpack- just not compatible.

Hoosierdaddy's picture
Hoosierdaddy
Posts: 16
Joined: Mar 2010

I am fortunate: DaVinci 12/21/09, 99% continent from catheter removal. Wore pads for a week but didn't need 'em so stopped. Occasional minor stress leakage continued for about another 6 weeks. I still have ED issues. I think return of continence is all about how good your doctor is (you want one who has done hundreds of these), how good he is that day on you, and how your body responds. Return of continence and potency seems to vary widely. The d**n catheter was the worst part of it all, it was a constant irritation where you don't want to be irritated.

bdhilton
Posts: 759
Joined: Jan 2010

I am 55. Had my cath removed 12 days after surgery and was "dry" I am 3 weeks one day out from surgery and I have had not one issues however, I do wear a pad for security and I assume I will wear one for a few more weeks...I believe it is the luck of the draw in this process. I will be having radiation follow up (37 treatments) in about 90-120 days from surgery and hope I have no incontinent issues...best to all

randy_in_indy's picture
randy_in_indy
Posts: 493
Joined: Oct 2009

I was continent at night sleeping right away...but took me more time to become totally continent during the day...around 50 days or so...had Robotic on 12-29-09 with Dr. Hollensbe and Scott at Urology of Indiana. A sling was implanted during the Da Vinci. I am happy and content with both continence and ED.

Randy in Indy

hunter49
Posts: 204
Joined: Oct 2011

Hi I am svheduled for surgery the 10th. I am 49 and recently diagnosed. I am a 3+4 PSA 5.4 and only 3 of 15 cores posative all in the same spot. I am also PNI posative. I am not 100% committed. You seem around my age would love your thoughts.

Trew
Posts: 892
Joined: Jan 2010

It took me 7 months to have about 97% control under normal conditions. Had lots of leakage while backpacking, exercise. Hit radiation and dropped back to day one of leakage problems. Rad ended Jan 15 of this year and I am just starting to regain control. Now down to about 2 pads a day, one at night.

I have never been pad free since surgery back in march 09.

This makes me very sad.

:(

mjbruce
Posts: 5
Joined: Nov 2009

Sorry to hear that Trew, sounds like you are improving though.

I had RP on 10/21/2009. Didn't regain control until mid January, it was about 8-9 weeks after surgery before my last pad. Leaking was never really bad, more of a drip. One pad per day, one at night. As long as I stay away from caffiene, I have pretty good control.

Mike
NE Indiana

marc1957
Posts: 79
Joined: Oct 2009

I was continent after cath removal. Did learn that I needed to pee, then fart, otherwise there was an issue - only did that once tho. Wife is happy about using the bathroom to fart/pee now :-)

randy_in_indy's picture
randy_in_indy
Posts: 493
Joined: Oct 2009

The other part the wifes are happy about is sitting down to pee....much easier for all concerned...of course depending on who cleans bathrooms.

Randy

lion1
Posts: 240
Joined: May 2007

Wow, I shouldn't be in this post. I have been incontinent for 4 years now. In the midst of getting another Botox Injection, the first one didn't work.

After reading all your comments, I believe it really is the luck of the draw. My surgeon posts dozens of men's pictures on his website, not one mention of anyone incontinent. But, he can't post mine, cause I can't give him a happy ending yet. And I mean that in terms of being incontinent and problem free. However, as a surgeon, he got all the cancer, so that was great and I don't take anything for granted.
Of course there's other things that result in incontinence. I wonder if the surgery caused me to have an over active bladder?? See,that's my problem and nothing has worked yet. AS FAR AS I KNOW MY SPHINCTER'S IN PRETTY GOOD SHAPE.

I was surprised when the first dose of Botox didn't paralyze my muscles like it should have, but he did give me a small dose. I have read that 88% of men see results in one week. Surprisingly, my Injection had absolutely no effect at all. I told my wife I must be Superman for all the wrong reasons.

As I stated before we are all individuals and we all encounter our own struggles. This site is the most helpful when you post and someone out there is experiencing near close to what you are and you see what magic bullet worked for them.

Hence, my comment about posting to this tread, the men who have been continent 6 weeks after surgery are truly blessed. For those of us who have been incontinent for years, we just have to fight much harder. This is no walk in the Park! And if it is a walk in the Park---It's a real Wet One!

Lion1 :)

Trew
Posts: 892
Joined: Jan 2010

My surgeon was highly recommended, too, but I also am withholding judgment for now.

I am also on the hormone shots and I have had radiation- bladderneck invasion- mircoscopic- but there, and maybe that has somehting to do with my control? But this thread has raised the question in my mind whether or not the bladder neck was damaged in surgery by the surgeon.

If I had this to do over again...........

But Lion, you aren't the only one having problems.

bdhilton
Posts: 759
Joined: Jan 2010

Lion, I am sorry to hear of your issue… It is for sure a fear that many of us faced before surgery… I have to smile about your surgeon not posting your picture on his site because you have a post surgery issue. I would have to question his intent ……This is important for others as they selected their surgery or treatment …what are the REAL statistics of the person who is going to touch you….Some food for thought…

bdhilton
Posts: 759
Joined: Jan 2010

I sat the first few days after cath removed becuase i did not want to watch blood come out but I have been standing since...what is the reason i am reading about guys sitting? thanks

randy_in_indy's picture
randy_in_indy
Posts: 493
Joined: Oct 2009

Most of the time I sat prior to the surgery anyway....My father kinda trained me to as a child saying it makes it easier for your mother to clean the toilets....lol When I first had the cath removed I had a hard time peeing standing up....I noticed this when I was outside...live in the country and can pee pretty much freely around my house in the woods especially at night...TMI for many I'm sure...but I tell it like it is. I also feel like I am helping the environment by saving water usage...when I'm already outside of course not like I say hey gotta go and then trek outdoors...I'm not the only one...noticing my neighbor accross the lake doing it...lol

I thought did my surgeon make an error and thats why it's hard to pee standing up? Then I thought maybe it's the sling he put in during the surgery....I questioned him and he said...nope to both that it was the swelling from the pipe fitting of the uretha and bladder neck and it would go away in a short while...he was right and it improved as I recovered.
I also know I scar easy and thought maybe it's scar tissue..but it was too soon after surgery to be that...currently I can do either and feel fine.

luckyman2's picture
luckyman2
Posts: 54
Joined: Sep 2009

Sitting is particularly important when doing Kegels while peeing... the urine lands up in the toilet bowl where it belongs and there's simply no mess to clean up.

zakpaga
Posts: 66
Joined: Jan 2010

I noticed after following Randy's advice on sitting versus standing that I feel less pain whenever I sit to pee. I guess, it is because of the lesser pressure on the anatomosis(the new connection between the bladder and the urethra). Besides, I can empty my bladder. When I am standing, I always try to stop the urine flow to stop the pain and then can not empty the bladder.

Although it may be too early to claim victory, I seem to be continent since cath removal.

I like the experience of peeing in the wood and having a manly stream but I can afford that around here. Just a joke.

Victor

randy_in_indy's picture
randy_in_indy
Posts: 493
Joined: Oct 2009

Yes, I just found it much easier to pee when seated...you are exactly right there is less pressure and I think you have it when standing it probably does put more pressure on the Anatomosis area and thats why I had a hard time also. When you sit...you just go ....Ahaaaaa

If you get the Tramadol let me know how it worked for you.

Randy in indy

gumbyrun's picture
gumbyrun
Posts: 52
Joined: Dec 2009

DaVinci on 2/26. Catheter out on 3/9 and drip drip drip ever since. I have cut back to one cup/mug of coffee in the morning (vs 3-4) and notice a bit of a difference. I also don't have a drink after 6 PM or so. I had a few beers on St Patrick's Day and some good Irish whiskey (is that redundant?) after 7 PM and was up quite a few times trying to pee and doing lots of dribbling.
I think it may be slowing down...
I used to drink a lot of water, at least a gallon a day before surgery, but now drink very little. I don't know if this is a stupid question, but have you guys noticed an increase in leakage if you drink more water/gatordade/juice etc.? I think caffeine and alcohol increase leakage but I would like to get back to drinking more water and clear pee...

lion1
Posts: 240
Joined: May 2007

Gumbyrun,

I have found that it does not matter with me what I drink, I still leak. Actually, although I have been told over the years watch your caffiene and alcohol consunption, I can attest at least for me-- Water goes through me just as fast if not faster. And another aspect I encounter is I vurtually leak, within minutes after drinking anything. Something I don't think I had ever heard anyone mention on this website. Hope this helps, but of course we're all different.

By the way, at the top of the list---Wine just opens up the flood gates!!!

Lion1

bdhilton
Posts: 759
Joined: Jan 2010

I believe it is Trew that says we are all snowflakes and I have to agree based on what I have been reading that we are affected differently from what we drink… I drink every thing now 3 weeks 4 days in from surgery (with the exception of alcohol yet) and what I drink does not effect me any differently from carbonated drinks to tea, coffee and water.. I am even drinking water up 10PM now and still get up about twice a night…

gumbyrun's picture
gumbyrun
Posts: 52
Joined: Dec 2009

38 days or so since DaVinci and I am dry all night. Today, I spent most of the day sitting at my desk and wore the same pad all day and it was dry when I took a shower this afternoon.
I was at the beach last week and drank 3-4 cans of Coors Light and it ran right through me. However, the good news is the good beer - Guinness, various IPA's, etc., stay with me.
More research is definitely needed on that one! Also, no issues with Makers Mark or vodka/lemonade. I stay away from carbonated drinks and only one cup of coffee in the AM.

It seems to be activity that sets me off the most. Did a lot of walking also at the beach and had leakage.

Sometimes I feel like I am leaking but I'm not. Weird.

No problems with ED. I take 1/2 20 mg Cialis every 3 days or so. Orgasms are great but different...I feel it more in my legs down to my toes. I don't look but I think they curl....

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