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ACC Treatment Options

Posts: 1
Joined: Aug 2009

I'm so grateful to have found this site. This month marks the three-year anniversary since I had radical surgery to remove a rather large adrenocortical carcinoma tumor. I was told by two doctors, one of which is at a cancer center, that there would be no follow-up treatment to kill any hidden cancer cells because ACC didn't respond well to chemo or radiation. So, after surgery removed the tumor (and a few other things!), I've gone for regular CT scans, x-rays and bloodwork, and so far, so good. No evidence of cancer. I was wondering if anyone else had a different experience after surgery to remove the tumor. Is there really no preventative treatment after surgery? I've always wondered and there's so little information out there about it. Any information would be most appreciated. Thanks a bunch! And my blessings to all of you!

Posts: 2
Joined: Dec 2009

I am so glad that you celebrated your three year mark. I have recently had a tumor removed which was an adrenal cortical carcinoma. It did not appear to have spread to other organs. No other tumors are present in the tests so far. I am beginning my treatment of Mitotane in order to "prevent" the possilbe spread of the very active cells inside the tumor. I will also undergo radiation therapy. Check out the University of Michigan Endocrine Oncology program for more information.
Please post your progress!

Posts: 2
Joined: Aug 2012


My husband also had a large tumor removed. 1.2 kilos. He was also not given any chemo or any medicine. Hope you are doing fine.


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