Jul 28, 2009 - 9:37 pm
I am 37 years old and I am facing my third surgery in 18 months,for reoccuring desmoid tumors. I had the first one removed from my abdominal wall along with partial ribs, and the second time I had 2 areas removed, one on my hip and one close to my kidney - Now it is coming back on my hip and growning into my pelvic area. They will probably take part of my hip bone this time and maybe part of my colon. I already had 6 weeks of raditation and now they don't want to treat me after the surgery. Does anyone have any experience with Desmoids... I am very scared it will grow back and cause greater harm!