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Two types of cancer.

willow547
Posts: 1
Joined: Jul 2009

I was just diagnosed with two types of cancer. I've been told that it is very rare that one person would have two types of
cancer. I'd rather not have any but, here we are.
I was diagnosed through a colonoscopy and was sent to a colorectal surgeon. He in turn sent me to a Radiologist,
but I'm getting ahead of myself. My appointment time has not arrived yet.
I am totally frightened, I just remarried after being widowed for 10 years and I have one child who has been diagnosed
with ovarian cancer. This is such a shock to me that I can't seem to get my head to stop spinning. I need someone
to talk to and I can't seem to find anyone who can do that. I realize when I go to the hospital for my treatment,
whatever that is going to be, I can get some feedback and hopefully help. I just don't know what to ask or what
to expect. Can someone tell me of their experiences. I feel so alone and afraid.
Willow

tootsie1's picture
tootsie1
Posts: 5001
Joined: Feb 2008

Willow, it's understandable that you're very scared right now. This is hard news to take. Nobody ever thinks they're going to hear the words, "You have cancer." Unfortunately, far too many of us do.

Try to stay as calm as you can until you have all the information about your treatment and such. It's wonderful that you have found this site, because there are people here who've been through all kinds of treatments, and everyone is so willing to help.

Let us know what you find out from your doctors.

*hugs*
Gail

eric38's picture
eric38
Posts: 588
Joined: May 2009

This is a good site for anyone who is going through cancer treatments. It does make you feel alone and scared but there are plenty of people here who will be in your corner. A cancer diagnosis is scary enough especially if you are experiencing it from both sides. It is devastating enough to watch a family member go through it with out the stress of having it yourself. There are people here who have made it through some seemingly impossible situations and have come through it. I am stage 4 and this site has given me great comfort and I have developed some real friendships. We are family here and you are welcomed in. You will not be alone here and hope abounds. Sometime soon you will get a post from someone that has a similar story to tell that you will relate to and it will give you great hope and the resolution to fight this beast. It`s never easy but it is necessary to reach your goal which is to get rid of cancer once and for all and it is possible.

Eric

Sundanceh's picture
Sundanceh
Posts: 4266
Joined: Jun 2009

Hi, Willow

First I would like to say hello to you. I'm sorry about your story, but am so glad that you found this site and so quickly. It is home to so many wonderful people with so much direct experience. I know it will be a blessing to you as soon as your head stops spinning. You've had alot to absorb in such a short time.

As Gail said so well, try to stay as calm as you can, getting too worked up before you have the facts will just aggravate things further, wait until your doc gets you some info...believe me I know how hard this is. I'm facing confirmation of Cancer for the 3rd time in 6 years and so I understand how you're feeling.

I tell you what...get some information from your doctor on what type of cancer that you have and then you can begin asking any questions that you have on the board...we'll all be real happy to help you....we all have it or have had it and are people who has directly experiences surgeries, radiation, chemotherapy and a host of other things that go on in the fight against Cancer.

I'm so sorry you have to endure this, but you have found a good place to go. I went 5 years totally alone and just found this site recently myself, so you have a place to come to when you need it...and we talk about anything and everything...and I do mean anything/everything. But that's the beauty of this board and the people who live here.

I'm saying a prayer for you to give you quiet strength and I just asked God to provide you a sense of calm so you could have a little peace while you sort this all out.

All my best to you
-Craig

mom_2_3's picture
mom_2_3
Posts: 937
Joined: Nov 2008

Willow,

First of all, what a beautiful name you have. It sounds very relaxing and soothing.

Second, we are here for you as a support group and will help in any way that we can. You are not alone.

If you want to read about anyone's experiences in particular you can always click on the username and many people have posted their diagnostic and treatment experience. You can click on my name to see my story.

Third and most importantly, I will keep you and your daughter in my thoughts and prayers.

Amy

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

That was the first piece of advice I was given when I got to this site. I stumbled on it accidently.... and I am soooooo glad I did. These people can relate to almost any situation you are facing. Not all of us are exactly alike but some are very similar. The medical knowledge I have learned here is phenominal..sp? Please keep the faith .

Jennie

karguy's picture
karguy
Posts: 1024
Joined: Apr 2009

be calm, and wait untill you get all the information from the doctors,and all your options.If you have any questions,you can come to this site ,and someone will be able to help.While you are waiting for your appointments,ask questions that you want to ask the doctors,and write them down.That helped me when I talked to them,because I tended to be on information overload.We will pray for you and help as much as we can.You can get alot of information,and advice here.

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

Willow,

Welcome to the site. I am sorry you had to find us.

15 years ago I was diagnosed with cervical cancer. While doing the work-up before surgery, it was discovered that I had uterine cancer as well...two separate primaries at the same time. I was lucky in that they were both Stage 1 and easily defeated. Fast forward to Oct 2008, and cancer of the rectum was found, another new primary. Lucky me...3 cancers! This time it was Stage 3. And here I am 9 months later NED (no evidence of disease).

There is hope. Breathe. Get the facts from your doctors and prepare to fight. A positive attitude goes a long way to helping your journey. Come here and ask any questions. There are many folks here that can help.

Many hugs, Vicki

KathiM's picture
KathiM
Posts: 7864
Joined: Aug 2005

I was diagnosed with rectal cancer. On the PET scan, a lump I had had for 10 years plus in my breast showed up, also. I was told that we would fight the rectal first, since it was more serious, and then worry about the breast. We did, and we did.

Nearly 5 years later, I am cancer free on both...

If I can do it, anyone can!!!! Hang in there!

Hugs, Kathi

SandyL
Posts: 220
Joined: Feb 2009

I, too am sorry you had to look us up. You will be so glad that you've found this site, tho. The folks on this board are so helpful with information and experiences with their particular treatments. Get as much information from your onc as you can, take someone with you to help you remember the words and comments that are used. It seems that the main thing that we all remember is the word cancer. Then tend to zone out and everything else is a blur. My very best to you and to your daughter as well. I look forward to more posts from you.
Sandy

Annabelle41415's picture
Annabelle41415
Posts: 4188
Joined: Feb 2009

So sorry that you are experiencing an overwhelming amount of news right now. It is ok to be scared and afraid but you have found a wonderful board here with a lot of people with knowledge. You can ask any questions you want and I hope that you feel like you have a new family here when you post. Let us know how you are doing.

Kim

greenfallow
Posts: 1
Joined: Jul 2009

Hi Willow,

My family is going through a similar situation. My brother was diagnosed with cancer of the adrenal gland (ultra rare) in January. While they noticed his appendix was enlarged, they thought nothing of it. He finally got his appendix out 2 weeks ago in what we though was a routine appendectomy only to find out yesterday that he has cancer of the appendix (also ultra rare). We are baffled and upset that he has not only 2 cancers but also two extremely rare cancers and at such a young age (29).

I am so sorry to hear about what you are going through. Please know that you are not alone and that there are others who are dealing with this.

Best,

Alla

krystiesq's picture
krystiesq
Posts: 242
Joined: Jun 2008

She was DX Nov 07 colon cancer and Feb. 09 with thyroid cancer. Thyroid removed, doing well with the fight against colon cancer!

Danarey
Posts: 1
Joined: Dec 2009

I am 39 years old and recently diagnosed with both breast cancer and ovarian cancer. My dad died young of colon cancer. I tell you this not to be depressing, but to tell you that it sounds like you are either BRCA1 or BRCA2 positive. If so, there is MAJOR good news happening right now. PARP inhibitors are turning out to be amazing. Right now there is a Stage III trial set to begin in the summer, and MD Anderson in Houston is about to start Stage II trial in January or February. If you and your daughter are BRCA positive and are unable to reach remission or you have a recurrence, you should seriously consider this trial. Google it. You'll see. It is being called the "holy grail" of the latest family of cancer drugs and the investors are going wild. If you don't know your BRCA standing, please get it done immediately. It's just a blood test.

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

I've had two primary cancers, but not at the same time. I fought cervical cancer for a couple years before finally beating it (NED over 5 years now).

I was dx'd with colon cancer this September (stage III or IV - we'll never know for certain). The tumor was almost completely blocking my colon, so they think I'd had it for several years. I'm still in the middle of treatments, but had a PET scan last week that showed I am currently cancer free!

I know it is very scary, and overwhelming, to get one cancer dx - two has to really leave your head spinning.

My suggestion is to do some research on both of your cancers, and the treatments available for them. Write down all of your questions. Don't count on remembering them even if you normally have a good memory. When you meet with your doctors you'll get so much information at once, you'll be in overload mode. Keep a notebook that you take to your appointments. Also ask for copies of all labs, tests, and surgeries to keep in your notebook.

Yes, it is uncommon to have more than one primary cancer, but you aren't alone - there are others that have been through it and have won the battles! This is a great site to get information and support from others that have been through this, or are going through it now. Come back and post your questions, or fears, or when you just need to vent. You'll find great support.

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