Jun 24, 2009 - 6:52 pm
Hi all - newbie here!
I discovered a lump in my neck the first week of May and was diagnosed with a large nodule that was "almost certainly benign" but was pressing on my carotid, trachea and esophagus so surgery was scheduled for a lobectomy. The fine needle biopsy done before surgery came back negative and then the frozen section during surgery came back negative and I was told by the Dr. that he would be "very suprised" if anything malignant showed up. The week after surgery I went in to get my stitches out and he was suprised to discover that my path report was not back yet so he did some calling and found out that there were some abnormalities so my path was sent to Mayo for a second opinion. A week later on June 12, 2009 I got the phone call from my Dr saying they found papillary thyroid cancer.
Now I have my follow-up appointment on July 2 where we will discuss further treatment options and I have so many questions! From what i've read from various websites [ACS, NCI, ThyCA.org...] I will have to have further tests in order to fully stage the cancer so i'm guessing I will have a Scan? The nurse at the office said we would most likely discuss RAI too? Will i have to have another surgery to remove my right lobe? Has anyone had just the lobectomy without a second surgery? I have a strong family history of other types of cancer so I have seen people go through treatments with varying results... does anyone have any stats [or know where i can find them] on recurrence rates or rates of other cancers after a thyroid cancer diagnosis?
Sorry for so many questions but any answers/experiences and also any suggestions for questions to ask my doctor are very much appreciated!
Thank you -