CSN Login
Members Online: 12

Firmagon (Degarelix) substitute for Lupron

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

After discovering this new gonadotropin drug I discussed taking this with my Oncologist and we decided to inject this in a week or two since my PSA doubled from 2.8 to 4.7 this past month.
If you have any experience with Firmagon from Ferring Pharma I would love to hear back on side effects etc. I'm a 58 yr. old two year survivor, 14.7 PSA, Gleason 7 with prominent metastactic disease.
Thanks in advance...

VascodaGama's picture
VascodaGama
Posts: 1511
Joined: Nov 2010

Hi RadHope
There are many cases of patients treated with hormone therapy plus radiation, as your case. Surely many did well and many did not do very well, just like many guys that choose other type of therapies. Once hormone therapy is over and you can check your real (not influenced) PSA, then you will know about the full success of the treatment.
There is one site (You Are Not Alone =YANO) where you can see patients with the same status as yours, and where you can read about their stories and outcome. You can even choose patients by their Gleason score + PSA + Age, etc. Just navigate within this site and you will find about guys who had the same status as yours;
http://www.yananow.org/Chart-Gleason.htm

Your neighbor nurse is not being realistic because she does not know. Just keep positive about the treatment and if the results are not as you most wanted, remember that nothing is lost. You just have to handle things as they come along.

Tomorrow it is your “T” day. Good luck.
I will think of you.
VGama

RADIATION HOPEFUL
Posts: 206
Joined: Dec 2010

Thank you for the post. I truly appreciate the reply.
Tomorrow at 8 A.M. I must be at the hospital to start my journey now that the 3 gold seeds are in place.
I guess there are failure & success stories with any of the possible treatments.
I will definitely check out the site you noted. I will also keep posting to let all know first hand the radiation outcome.
Thanks again for the thoughts , I enjoy reading from this site---Good Wishes & prayers to all.

Rad Hopeful

RADIATION HOPEFUL
Posts: 206
Joined: Dec 2010

Hello All

I had my simulation run in the hospital for radiation treatment. A cast was made using a thin plastic sheet -it is warm & moist fits-- the contour of your upper body from the waist up to your chest. Once hardened it is removed & retains your shape for use throughout treatment, Also had three tattoos (very small) permanently placed on the area to be targeted. THis was all done while lying on a table at a cat scan machine. Pictures/X-rays were taken to work up a plan of attack on the prostrate etc.
I questioned the success rate of this radiation & was told there are numerous success stories. I'm now scheduled to go back next Thursday & have a simulation run then a full schedule of radiation days will be given. A diet guideline was also given. The hospital Cancer Center is warm & the nurses all very compassionate understanding your dilema.
I'm sharing the experience with those contemplating the radiation approach.

Wishing all success in whatever your approach in fighting this disease.
Rad Hopeful

VascodaGama's picture
VascodaGama
Posts: 1511
Joined: Nov 2010

RadHope,
Thanks for the details. Many here are following your report and surely will take the benefit of the knowledge you are transmitting.
Could you please give details on the diet guidelines you were told to follow.
I wish you a continuous success.
VGama

RADIATION HOPEFUL
Posts: 206
Joined: Dec 2010

Hello VGama & all

I was given several books with pages of info of what to take IF you encounter any of the side affects Too long to post here , But I also have a paper giving general guidelines of a diet while undergoing radiation therapy to the pelvis & or rectum(prostrate,bladder,colon & rectum.) On this paper it states under diet> DO NOT take a laxative, Drink plenty of fluids--8 to 10 (8 oz.) glasses of fluids per day--avoiding citrus juices & caffeine, plus You will be placed on a low residue,low fiber diet to follow while undergoing radiation. The book gives lists of foods & liquids if you have diarrhea, foods rich in calories /protein,foods easy on the stomach--The book is titled National Cancer Institute-Radiation Therapy & You.
I hope this helps in some respect. I was told to drink a full 16oz. of water at least 1/2 hour prior to the rad. treatments so the bladder can be moved if necessary---they want me to be the in the same condition when lying on the table. All this helps in guiding the beam when they start & minimize affecting the other organs. I have some reading to do but shared what I know so far. I wore jenes to the hospital but they had me change into a gown & gave a sheet to wrap around myself since the gowns are open in the rear-only undress from the waist down. I was allowed to keep my sneakers on which they strapped in place with velcro while lying on the table-- and my hands were held across the chest. Two nurses made slight position adjustments. The entire process din't take more than 45 min. at most then I was told I could leave & return next Thursday as I indicated earlier for a simulation run.
Rad Hopeful

VascodaGama's picture
VascodaGama
Posts: 1511
Joined: Nov 2010

RadHope
I appreciate your posting. You are a source of inspiration for many following your steps.
I wish that your two months of therapy are uneventful marked by success.
Vgama

RADIATION HOPEFUL
Posts: 206
Joined: Dec 2010

Hello VGama

I will gladly post the journey I'm venturing into & hope it helps others in making their decisions whatever they may be. Treatment decisions are based on individual circumstances--I can only realay what I'm encountering as I move forward.
The mold of my body had my name written on it & will act like a jig making sure your in the same spot for all treatments. The 3 gold seeds inserted in the prostrate & tiny tattoos are other guides to assure the radiation beam will concentrate on the prostrate & not hit any other organs. I wrote a E-mail off another site to a man that went through the same treatment & he is doing well with a constant PSA check -both he & his urologist are pleased with for over a year now which is encouraging. He kept on working & maintained his stamina although got a little fatigue towards the end. All side affects went away after treatments stopped & he is doing well. I love to hear success stories & wish, hope & pray the best for ALL traveling this journey.

Rad Hopeful

RADIATION HOPEFUL
Posts: 206
Joined: Dec 2010

Hello VGam, Kongo & all

Latest info

Just got my PSA results from seond shot of Firmagon> 4.18

First shot took PSA from 55 to 17 Now 17 down to 4.18 ---My hope is that the radiation treatments take it to ZERO. The latest number will be the baseline used in radiation treatment
Prayers & blessings to all

RadHopeful

VascodaGama's picture
VascodaGama
Posts: 1511
Joined: Nov 2010

Excellent news. All is going into your favour.
I hope you keep giving us those fantastic reports.
Wishing you the best
VGama

RADIATION HOPEFUL
Posts: 206
Joined: Dec 2010

Hello VGama,Kongo & All

This evening I had my third shot of Firmagon --the first two lowered my PSA over 92% from 55 to 4.1 as I noted earlier. Well I also had a cystoscopy done to check out the Bladder. I'm happy to report NO ISSUES with the Bladder --No Cancer. Makes me feel better knowing all is clear in that organ. Tomorrow is Radiation day --will keep posting progress of this journey providing I'm not boring or offending anyone. One more item--I questioned the size of the prostrate & was told it shrank from 30 to 17 grams. Another good sign, the radiation should shrink it even smaller according to the urologist.

Rad Hopeful

wayne2's picture
wayne2
Posts: 31
Joined: Apr 2010

Hi Glen........I'm always encouraged by your reports !!!!:-)) I'm 77 years old and feel I still have much to do in life . FAmily, church, fishing, and wife of 36 years. My last psa check in Jan 2011 is still showing a 0.10 reading. I am so grateful for my treatment ........ a real blessing . I had 43 IMRT treatments in 2006. My psa went down to 0.60 and then started climbing back up....so my Oncologist started me on the firmagon in April of last year. If my psa is low one more time then I'll get it check every six months.In the meantime I stay busy outside of my head if you know what I mean.

best wishes.........

wayne

wayne2's picture
wayne2
Posts: 31
Joined: Apr 2010

Hi Glen :Another psa check last month..........still at 0.1. Another injection today..............more pain, but that's ok........It's a blessing. We've had ice and snow so I got out my oil paints again......painting a picture of our home.Fishing soon tho:-))

How you doin , Glen ?? I couldn't find your Feb 01,2011 post?? I hope all is well................you have that beautiful daughter to stick around for............

wayne

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Hi Wayne,

I'm sorry I haven't been able to reply sooner. Having problems accessing this board due to very slow loading times. I wonder if it's just my connection or if others are having problems too.

Good to hear you are doing well and yes we have been blessed with great supporters in our lives. Speaking of which...rescued a female Yellow Lab pup a couple of months ago from the shelter that has become my best friend and motivation for early morning walks and getting to the Dog Beach. I even lost ten pounds since I got the pup.

Had my PSA test results Friday and my PSA jumped to 3.5 from 1.3 in three months so I guess it's time for another shot of Firmagon. My last Firmagon injection was back in September 2010. I've been pretty active though...my Daughter and I joined an Archery Club recently and been fishing from a Kayak so been getting upper body exercise and eating well too. Hopefully my next Firmagon injection won't set me back too much. In the meantime best wishes to you and yours.
Glen

wayne2's picture
wayne2
Posts: 31
Joined: Apr 2010

HI GLEN...........NOW I'M THE ONE WHO'S LATE :-))We went to Phoenix,az to visit family this month.

I really like your puppy story;what a great piece of therepy !!!...and now archery too !!My son in Austin has a good friend who has written some books about making bows.....the "robinhood" type. So our son made one. Sounds like you're having some more good times with your daughter :-)).........family times are blessings to me !!I like your puppy story......sounds like it's great therepy :-))......and now you're fishing from a kayak.....whew !! good for you !! I've been fishing some and having fun catching a variety of bass.

Our trip to the Phoenix area was a real blessing.............visited with son, five grandkids, and five great-grandkids......whew !; made for great naps:-))...and another son with one stepdaughter.
feels good to be home;psa hangin' in at 0.1 ........blessings still..........wayne

wayne2's picture
wayne2
Posts: 31
Joined: Apr 2010

ALSO............I hope your latest shot gets you back on track; You might be plowing new ground for many of us with your off-on-again shots.

peace..........wayne

wayne2's picture
wayne2
Posts: 31
Joined: Apr 2010

ALSO............I hope your latest shot gets you back on track; You might be plowing new ground for many of us with your off-on-again shots.

peace..........wayne

wayne2's picture
wayne2
Posts: 31
Joined: Apr 2010

ALSO............I hope your latest shot gets you back on track; You might be plowing new ground for many of us with your off-on-again shots.

peace..........wayne

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Hi Wayne,

Good to see you're painting and keeping busy.

I received another 80mg. Firmagon injection this past Monday, May 16th after having an eight month run of "Beating my chest."

My PSA numbers were below 4. up until just recently ...April 1st came in at 3.5 then jumped to 4.9 on May 5th.

The injection site pain wasn't as bad this time around since I laid down on my back relaxing my six packs.LOL I believe someone on these boards suggested the more relaxed you are the less pain you will endure and this seemes to be key for the sub-Q injection. I do have the raised red patch and a little itching but I don't have the "Mack Truck" feeling this time around.

Wishing you and yours good health.

wayne2's picture
wayne2
Posts: 31
Joined: Apr 2010

Hi Glen......Really good to hear from you :-))I had another shot on May 14th..........and that night a reaction: pain,major flushing,slight fever, no appetite......and it seems like I've had this several times over the last year along with the BIIIIGGG raised red patch. It's gone by morning (not the patch)...whew !! MACK TRUCK??
But with my psa holding at 0.1 I'm still counting my blessings. It's been over a year now. I sure hope your on-again off-again method keeps working for you.

We've had much rain this spring.......and the lake (Norfork) has risen some 28 feet above normal pool and is now about 50,000 acres instead of 27,000 acres.........the fish have a lot more water to hide in.

blessings....................wayne

wayne2's picture
wayne2
Posts: 31
Joined: Apr 2010

Hi Glen...I can't seem to locate your latest post. I'm having trouble seeing all the latest posts. I hope all is well with you .I'm still at 0.1 psa; another check next month.

Lots of good fishin' now.....I'll write more later.

best wishes and blessings..........Wayne

wayne2's picture
wayne2
Posts: 31
Joined: Apr 2010

HI GLEN.....I HOPE YOU CAN GET THIS. MY PSA HAS BEEN ZERO FOR OVER A YEAR NOW. MY UROLOGIST SUGGESTED LAST WEEK TO SWITCH TO INTERMITTENT HORMONE THEREPY.......STILL WITH FIRMAGON. I GOT A SHOT LAST WEEK BUT NO MORE NOW UNTIL I HAVE A PSA CHECK IN OCTOBER............HOORAY !! I'M ENCOURAGED BY YOUR RESULTS DOING A SIMILAR APPROACH.THE GOAL FOR ME IS TO PROLONG THE BENEFITS OF THE HORMONE BEYOND THE PREDICTED TWO TO THREE YEARS.

HOPE YOU ARE WELL AND BLESSED WITH FUN TIMES WITH YOUR DAUGHTER AND THE PUPPY:-))

MY email address is :lesnorman@suddenlink.net

Feel free to drop me a line any time.

wayne

califvader's picture
califvader
Posts: 108
Joined: Aug 2010

i am close to making a decision on my treatment. i am wondering why you started out on lupron and then decided to change to firmagon. also, what are the differences in side effects you experienced on both. which one do you feel your body handled better? i had a radical in 2003 and my psa has risen over the last 7 years.

RADIATION HOPEFUL
Posts: 206
Joined: Dec 2010

Hello caligvader

Don't know who you are directing the question to?
I'm going for radiation treatments starting tomorrow & so far the Firmagon(Degarlix) is working for me, My original PSA was 55 & after two shots it's now at 4.1. I get my third shot today before starting radiation tomorrow.
My original urologist wanted to start on Lupron which causes a flare in the PSA readings, the Firmagon doesn't do that. My second urologist is more up to date & knew about the difference. The only side affect that bothers me is an occassional hot flash. I assume we all may react differently thus I'm giving you some insight as to my personal experience only. I suggest you read the first & second pages where several members convey their personal experiences ---this may give you a better understanding of the drug side affects.

Rad Hopeful

califvader's picture
califvader
Posts: 108
Joined: Aug 2010

my question is directed to medcomglen.

VascodaGama's picture
VascodaGama
Posts: 1511
Joined: Nov 2010

RadHope
I am very glad to read your improving news. Your decreased PSA is already part of your success. Please continue posting, you are not offending anyone. Could you inform us how you are accessing the RT clinic? Is it close to your place or have you temporarily moved to stay closer?
I wish you the best on your “T” day. Do not forget of drinking enough water one hour in advance.
VGama

RADIATION HOPEFUL
Posts: 206
Joined: Dec 2010

Again Thanks for the reply

Although I tried to go to Fox Chase in Philadelphia & couldn't because it's out of my Insurance network, I feel content with going to a local hospital --aprox. 40 min. drive one way.
I have a H2o bottle I will fill with water & drink 1 hour prior to having the rad treatment.
We had another snow storm yesterday & last evening,I'm going to plow some snow before I have to leave for the hospital.
I'm pleased with the high percentage drop (over 92%)with only two shots. Anxious to see what the third shot is going to do. With the combination of Hormone drug & radiation it should lower it much more. I'll keep you posted regarding results as I move forward.I'm also VERY HAPPY with the bladder showing clean although I didn't care for the cystoscope.

Cordially

Rad Hopeful

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

Hopeful, I am glad to hear all the positive news and hope your progress continues to go smoothly. It is interesting to read the history of your posts here to see the impact on your state of mind and confidence as you have asked great questions, sought out answers, educated yourself, and moved on to the next steps. Soon enough you will have all this in the rear view mirror. I hope you continue to post after your treatments because I think you will be a great source of knowledge and inspiration for those coming along a similar path.

Best to you.

K

P.s. Maybe you would consider starting a new thread...the enormity of this one is becoming increasingly difficult to follow.

RADIATION HOPEFUL
Posts: 206
Joined: Dec 2010

Thank You Kongo for the post.
I must leave in a few minutes for my treatment (morning schedule)it's a 40 min. drive.
Regarding starting a new thread --do you mean posting on the discussion board instead of here on the post?
I will keep all informed of my progress providing there is interest.
Blessings to all having to follow this journey & make personsl treatment decisions.

Radiation Hopeful

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

I think you should start a new topic thread from the main PCa board. Best to you in your treatments.

K

RADIATION HOPEFUL
Posts: 206
Joined: Dec 2010

Hello Kongo VGama & all wishing to follow my journey

I took the advice of Kongo & posted a site on the Discussion Board with the same title as the subject above. Hope this give some guidance to those interested in my personal treatment decision. Bless everyone involved with this terrible monster.

Cordially
Rad Hopeful

RADIATION HOPEFUL
Posts: 206
Joined: Dec 2010

Hello KONGO ,VGama & All interested in this venture

I took your advice & posted my update on the discussion board with the same title as the subject noted, I also included my home E-Mail address in case you wanted to correspond & ask questions I didn't address.
Bless everyone having to follow this journey to rid ourselves of this monster.

Rad Hopeful

VascodaGama's picture
VascodaGama
Posts: 1511
Joined: Nov 2010

Wardy,

I do not know your history with the cancer, but you should not be scared about your oncologist comment. Prostate cancer is not a direct “kill” of a moment. Event in advanced cases were patients do not respond anymore to drugs, the time to death is measured in decades and the majority die with the cancer not of the cancer.
You say that your hormonal treatment is “working like a charm” and so it will for many years. The only difference is that RT is done aiming at cure whether HT is done to keep the “bad-guy at bay”.

There is no dough that you should came up with a decision on what you want to do and on what you trust, and then pass those wishes to your care givers. They will understand and return you their advice (not threaten opinions).
If you decide to go on with HT, there are many examples of fellows who have chosen HT as prime treatment and that have done well over ten years and more. If you want to give it a try on “cure”, radiation therapy has more chances of success if done before metastasis occur.

Our comrades in this forum will give you advice on your case but you should post a chronology of your case. Here is a site of one fellow that have been on IADT3 for the last eleven years. He moved into HT just by chance when waiting for RT treatment (similar to your case). Have a look at it;
http://www.healthboards.com/boards/showthread.php?t=723434
http://www.healthboards.com/boards/showthread.php?t=767909
http://www.healthboards.com/boards/showthread.php?t=827823

I wish you successful conclusions.
VGama.

jogger
Posts: 47
Joined: Nov 2009

After a dozen shots my PSA has gone from 800 to 0.6. I used to get a flu-like reaction to my shots, but no longer. Still pain at the injection site for 2-3 days. One problem is an expanding waistline and a contracting penis. I exercise religiously an hour a day, but because of a bad back I have to do modified exercises and hardly break a sweat so that I can't bring my weight down. My jogging days are over. Still getting up 2-3 times a night. I leak just a couple of drops of urine during the day, just enough to have to change my undies every day. I wonder if that's 'normal' for age 79. I keep forgetting to mention it to the doctor. Doctor is not ready to give me intermittent shots. I think it's a pocketbook matter with him. Incidentally, I'm a survivor of testicular cancer. I had one testicle removed, followed by chemo and radiation. To treat the prostate cancer I've only used the Degarelix.

Katman
Posts: 6
Joined: Jun 2010

After seed implants in 2006 at age 76, PSA went from 9.5 to 0.0. PSA started to increase after about 6 months and rose to 9.0 in May 2010. Started Degarelix in May and PSA went down to 0.0 in December 2010. Switched to Lupron at that time and first PSA test of Mar 25 was still 0.0. Hopefully, continued use of Lupron will keep PSA at 0.

brasildoug
Posts: 2
Joined: Mar 2011

I am a 71 year old quite active (do and hope to continue to do triathlons) whose RP in December 2008 wasn't successful in getting all my cancer. My PSA rose fairly slowly. Late January this year a bone scan disclosed 3 lesions and a ProstaScint in February disclosed a suspect lymph node. My PSA has recently spiked going from 6.4 January to 8.1 in early March. I have decided to proceed with HT and after reading about Degarelix's no T flare and quick PSA suppression asked my doctor for this hormone versus Lupron. Would like feedback on whether or not I may have been hasty in my decision.

Thanks.

Katman
Posts: 6
Joined: Jun 2010

brasildoug,

My doctor started me on monthly Degarelix first in order to get the PSA down to 0 ASAP. He told me in the beginning of my treatment that once the PSA went to 0, I could get off Degarelix and wait until the PSA started up again. At that time, Degarelix would be re-started again. Instead of re-starting Degarelix, the alternative would be to go on 4 month Lupron. I am now on 4 month Lupron and quite happy that the PSA continues at 0. However, I believe that starting with Degarelix first and then switching to Lupron was the prudent thing to do, in my case. YMMV

brasildoug
Posts: 2
Joined: Mar 2011

Thanks Katman. I had my first two Degarelix shots yesterday and today. Knock on wood, no significant pain in shot area. Glad (so far) that I choose Degarelix as my PSA climb significantly since Jan - Jan = 6.7, Feb = 7.1 and as of yesterday 13.2. Looking forward to seeing a zero before the decimal point. I'll talk over with my Oncologist about whether or not I should consider switching over to Lupron. D

Update 5/1/11
My first PSA since starting Degarelix came back at 1.3. Very satisfactory result. Had my first maintenance injection, 80 mg. D.

Update 5/27/2011

Must confess I am very satisfied with Firmagon (Degeralix) so far. My PSA has now dropped to 0.5 and my latest injection was totally pain free.
D

tetech's picture
tetech
Posts: 8
Joined: Feb 2009

David Emerson mentioned the injections should be "at least a 45 degree angle, and must finish the complete injection before removing the needle". I noticed the Mixing instructions on the powdered drug are very detailed, using a larger bore needle for mixing and a smaller one for injection. A video is at http://www.firmagon.us/us/us-hcp3/pcl-contentsh/accessser/0/252/229/administering-firmagon.html it will be available if you answer yes.
It also says patients should not apply pressure to injection sites.

Determined Laura
Posts: 1
Joined: Jul 2011

Hi guys.
I've read this thread and wanted to add my rather unique perspective. I have had granulosa cell ovarian cancer since 2001. Currently fighting my 3rd recurrence. GCT is only 5% of ovarian cancers so there's little research & most of our treatments are "why not" versions of prostate, breast, ovarian or other hormonally-related cancers. I have a brilliant medical advisor who has kept his wife GCT disease free for 7 years using Lupron. He's not an MD or PhD, but is a relentless researcher who never stops until he has answers & puts the puzzle pieces together.

I used Lupron for several months, but had FSH flare after the first shot. FSH is part of the pituatary-hormonal response that causes GCT to rise in normal premenopausal women - and unfortunately does the same thing to rogue GCT cells in post-menopausal & even post-hysterectomy GCT patients. My advisor strongly suggested I try Firmagon because there doesn't seem to be the FSH/LH flare that can happen w/ Lupron causing an increase in granulosa cell tumor activity.

So, I had first Firmagon shot Wed-hurst like hell & is red, sore & some hard areas. However, it's manageable. Agreed Advil helps. Also, icing & hyrdocortisone 1$ or Chilled aloe gel. After 2 insurance doctor reviews, Anthem Blue Cross has denied Firmagon as not clinically proven for me. You guys don't know how lucky you are, even with a nasty cancer. You have so many treatment options; I have almost none. With luck, my FSH will drop from 15 to single digits, then lower. I'll somehow pay for the Firmagon, but will also ask Ferring about their compassionate drug program. Could be a whole new revenue source for them.

It's tough having an orphan cancer that virtually no one's researching. My advisor is absolutley a godsend and may be starting an medical advocacy program. We're all waiting to see if I get the amazing FSH drop that is the equivalent of your PSA drops.

I also love cars & empathize with all of you. I agree, attitude makes a huge difference and no one is going to stop me from being there for my children & husband.

MidwestDad
Posts: 1
Joined: Feb 2011

Been following this post since diagnosis and your attitude and advice have been very encouraging and helpful, despite my not posting yet.

Stats: Age 55; diagnosed January 2011; PCa metasteses to bones; Gleason 8, PSA 29. On monthly Firmagon, PSA dropped steadily to 7 but has now risen to 10.27 and 10.49 past 2 months. Very depressing and discouraging.

Doc has not "pronounced me" Hormone resistant. He mentioned other choices (Casodex, etc.) but will see based on PSA next month. Has anyone had experience with PSA rising and then going back down, or does it sound like I will need a new therapy?

Read about your "Mac truck" pain. I had terrible pain each month which did not lesson with later shots, as others have experienced. One month, nurse offered shot in arm or buttocks instead of stomache and I opted for upper arm. Much, much better. My wife (she is more conservative and not a risk-taker, rule-scoffer like me) was so worried. She called Ferring (manufacturer) and they only recommend shots in stomache because it's the only place tested. Doc said it's the same. Was anyone here offered/tried Firmagon shot anywhere besides stomache? Wife is upset with me, but I am out fewer days with less pain this way.

Thanks for your friendship! Wishing you all a speedy recovery and long life!

jogger
Posts: 47
Joined: Nov 2009

I have just completed 16 months of injections which have brought my PSA down from 800 to .5. My doctor has given me a short vacation of two months from the shots, but he has warned that if I go back on the Degarelix, rather than, say, Lupron, I will need to get the two shots as when I started.
Has anyone had the same experience?

Hawk_Shadow
Posts: 1
Joined: Jul 2012

Hello,

I have been taking Firmagon injections since July 2012.

My PSA has dropped from 330 to 4.9.

At what point can I take a break from this drug?

Will sexual desire and function return?

I beleive my testicles have shrunk. Will this reverse?

I haven't asked my Urologist these questions yet.

He had suggested doing one years worth of treatement then visit the idea of a vacation from the drug.

 

My wife is 25 years younger than I and I want my sexuality back.

 

Dave

dw055
Posts: 16
Joined: Dec 2012

I started posting status after stopping firmagon, at this csn topic: http://csn.cancer.org/node/255429.  I was only on it for 3 months during radiation.

Samsungtech1
Posts: 350
Joined: Jan 2011

I started getting Deglasix? And casodex in March of 2012.  My last PSA was 0.000.  I have metastic prostate cancer, and hate these shots.  They take me about 14 days to get over.  Pain is bad.  It is keeping me alive so that

 Is a trade off for me.  I think we all hope this will work, for as long as possible, but we know it will not last.  Eventually it will become ineffective towards this.  Hopefully Onc.  Will have another drug for me. Not sure about others, but this really hur St me.  It lasts about 14 dayS.  It gives me freedom to live and travel and helps me enjoy life.  Traveling is good.  Unfortunately am having issues in other areas, but this drug seems to work.

I give it two thumbs up!!!

mike

 

 

 

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network