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Stage 4 Breast Cancer in Bone marrow

Suserq's picture
Suserq
Posts: 9
Joined: Jun 2009

I think i am still in shock as this always happens to everyone else not me. I was getting short of breath from easy activities. Went to hospital and was told my blood counts were very low. Had 3 units of blood and after seeing the doctor I was told I have Breast cancer that has spread to my bone marrow. I am not making healthy blood and that is why my blood counts are low. It is estrogen positive receptor cells in my bone marrow. I have been on a hormone therapy for three weeks. I am waiting to see the doctor next week. Hopefully I will get a timeline for when I will have the masectomy and chemo. Reading things on the internet can scare you. Most sites say I have a 20% chance of surviving for 5 years. Does anyone there have a similar case? I am so scared. However I need to put my faith in God.

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

I am so sorry Suserq. I know you must be scared. I had bc and had a lumpectomy and I am in radiation now. So, I can't answer about your situation. But, I will pray for you! Keep us updated please!

taleena's picture
taleena
Posts: 1612
Joined: May 2009

Oh Suserq... I am so sorry. I personally do not have experience with your situation. I too had IDC and just underwent a lumpectomy with lympth node biopsy. I will pray for you.. please don't google too much.. stick with reputable sites, ie: American Cancer Society, Mayo Clinic, Breast Cancer . org ... these are the best places to go for informatioin.

You have come to a wonderful place here with lots of women in every step of the journey.. some further down the road, some on the otherside and some just beginning..

You will find friendship, understanding, support and love here. Hang in there and post whenever you need about anything! We are here for you.

~Gentle hugs

~T

Christmas Girl's picture
Christmas Girl
Posts: 3643
Joined: Apr 2009

Glad you've found us, though sorry for the reason.

I'll chime in with T - please, do not merely "google" breast cancer, nor bone marrow mets, nor any part of it... Too much information can frighten you further, and - perhaps - even needlessly. Besides, there's - unfortunately - an awful lot of "junk" out there, too. Stick with the credible sites. Especially try to ignore stated "survival rates" - those are merely statistics, and we cannot always understand the rationale behind the numbers. A "5 year survival rate" does NOT mean you'll live for only another five years. Besides your own diagnosis, much will depend on how your body reacts to treatment. Speak openly with your own oncologist about these types of subjects.

We're all here to support and encourage each other, no matter the individual diagnosis or circumstances.

Best wishes to you.

Kind regards, Susan

rjjj's picture
rjjj
Posts: 1826
Joined: Jan 2009

I am so sorry for the BC spreading to the bones. Mine was stage 3a, tumor size 2.5, six pos. lymph nodes. I had mastectomy, chemo and am now doing radiation. We do what we have to do, and I am sure yours will be treatable, I am sure more sisters will post.

I just want you to know that we are here for you any-time day or night. Keep us posted on what the Doctor says. I will be keeping you in my prayers, hugs, jackie

jgridley
Posts: 169
Joined: May 2009

welcome susie and sorry for the dx. however you will find a wealth of love, and support here. a word of advice, stay off the google thing. it will scare the heck out of you.i
I come from a long line of heriditary breast cancer and thought that I was in the clear at the age of 46. Wrong!

If I amy share a little spiritual words with you, put your faith in god! He told me in prayer in october to trust him and he would take me to new and high
places. In november I was diagnosed with BC. I can't tell you the date or even when my first surgery was. just know it was in November and the second in December.
I don't have a similar case, but just know that you came to the right place...

sausageroll's picture
sausageroll
Posts: 415
Joined: Dec 2008

I agree with others...don't google too much. My husband was given 3 years to live with a very rare kind of lymphoma. That was 10 years ago. He recently went trekking in Nepal and is about to hike Mt Whitney.

I know how frightened you are, but we are here for you at any time and sometimes clouds do have a silver lining.

Suserq's picture
Suserq
Posts: 9
Joined: Jun 2009

Thank you all for your kind comments. I will also keep you in my prayers. It is nice to be able to talk to people that know how I feel. Sometimes family is not the best to talk to as they worry so much. I am not afraid of the masectomy or losing my hair. I really want to live!!! Praying that this hormone therapy works to kill the cells in my bone marrow.

Susan

jgridley
Posts: 169
Joined: May 2009

what hormome theraphy are you on if you dont mind me asking?

Julie

Suserq's picture
Suserq
Posts: 9
Joined: Jun 2009

I started taking Femarra 3 weeks ago today. I would love to read the book that book that others have mentioned. Let me know the author. I am overwhelmed by the kind words and support you have all given me. I feel myself feeding off your energy. Everyone says I am such a positive person and I show that side to my family but it looks like I can truly be me here!!! love hope and strength to all

Susan

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

You do sound like a positive person. This is a difficult time. Just know that we are all

here to support you. Please keep us updated! Hugs, Kylez

jgridley
Posts: 169
Joined: May 2009

I haven't heard of that one. I am on Ameridex...

Julie

mimivac's picture
mimivac
Posts: 2147
Joined: Dec 2008

I am very sorry you are going through this tough time. Things usually get better once your treatment protocol has been set and you start to actively fight the beast. Like others have said, don't spend hours reading horror stories on the web. We all do that and it is counterproductive and scary. Statistics do not tell the whole story. My mom, for instance, has had aggressive type 2 diabetes for over twenty years. When she was diagnosed at 38, they told her that she would mostly face kidney failure, blindness, and limb amputation within 10 years. They also said that she was not likely to survive into her retirement years. Well, she has, and without one single complication. She takes care of herself and lives her life.

Anyway, Susan, we are here for you when you want to talk.

Mimi

Jadie's picture
Jadie
Posts: 727
Joined: Mar 2004

I just wanted to say hi and welcome. I had a lumpectomy with node involvement, chemo and rads. I was on tamoxifen for 2 yrs and then switched to aromasin. My surgery was almost 6 yrs ago. Everything is very doable.

Best advice I had was- be careful who you talk to. You will learn quickly who that is. Surround yourself with loved ones and positive people. I always go one step further than the "one day at a time" saying. I say "live in the moment". I agree with the sisters to stay of the internet except for the recommended sites. You have a new language to learn- cancer. You will feel overwhelmed. Write down questions to ask your doctor and be sure to take someone with you to your appointments. Two sets of ears are better than one.

We are always here for you. Please keep us posted.

Hugs
Jadie

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Hi Susan. I am sorry for the cancer in your bones. I only take the %'s that my oncologist gives me and that still doesn't mean that it will be that way. Just trust in yourself, and, do all that you can to fight this beast. You are a survivor!

Kat11's picture
Kat11
Posts: 1931
Joined: May 2009

HiSusan, So sorry for you DX. Welcome to the club no one wants to really join. In April 09 I got my BC DX. I started to google, and search and well I about drove myself nuts. So be carefull.Take it day by day.

ladybug22's picture
ladybug22
Posts: 647
Joined: Sep 2008

welcome sue sorry you had to come here. there are lots of great people on here and we do care what happen to each other. please try to take one day at a time be good to your self .I had breast cancer mine was not estrogen feed but i did have a masectomy good luck to my sister in pink

ladybug22's picture
ladybug22
Posts: 647
Joined: Sep 2008

welcome sue sorry you had to come here. there are lots of great people on here and we do care what happen to each other. please try to take one day at a time be good to your self .I had breast cancer mine was not estrogen feed but i did have a masectomy good luck to my sister in pink

confused123's picture
confused123
Posts: 241
Joined: Jun 2009

Hello and sorry to hear of your diagnosis. I was told to stay away from too much internet research and glad I have. Please do not listen to statistics. There is a great little book out there called "Hope", I wish I remembered who wrote it. It was wirtten by a woman who had breast cancer and then it went to her bones. She was give 1 year to live and lived for 15 years! The book is very inspiring. If anyone else knows the book maybe you can say who write it. I recommend it to anyone.

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

That book sounds good. I think I will google it and see who the author is. You always have to have hope!

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

I am so sorry suserq. But, don't read too much on the internet, it will scare you to death.

The one you need to listen to is your oncologist. And, putting your faith in God, the best

decision. I will pray for you. Good luck to you Suserq!

dmc_emmy's picture
dmc_emmy
Posts: 549
Joined: May 2009

Susan,

You sound like a fighter to me. I know it's so hard to be strong, especially when everyone is telling you how strong you are...That's why this site is so good. It allows us to be vulnerable and to cry without feeling weak. It's even okay to say that you are scared. Only a fool would say they are not afraid. But, perhaps just as important, this site allows us to share, to be supported, and to be comforted by others who truly understand. Surprisingly, I have even laughed. Who would have thought that one could laugh when faced with fighting with the challenge of cancer?

Remember, it's okay to let others be strong for you when you can't-no one is expected to be strong all the time. We are survivors-you are a survivor, too, regardless of what the statistics say.

We are all there for you Susan, as we are there for each other. We are a sisterhood of many and there is strength in numbers--anything is possible.

You are in my prayers.
dmc

confused123's picture
confused123
Posts: 241
Joined: Jun 2009

I found the name of the book I mentioned. It is called "There is no Place Like Hope" by Vickie Girard. I love it because you can start from anywhere in the book and read a few pages here and there and relate. You laugh and cry. It is at Barnes and Noble for $12

Kim

dmc_emmy's picture
dmc_emmy
Posts: 549
Joined: May 2009

So glad that you mentioned this book, I'm going to B and N next week, so I will check it out then. I have a list of summertime reading, I'll just add this one on to it. Thanks.
dmc

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Do you feel any better Suserq? I hope so!

Kayla1's picture
Kayla1
Posts: 101
Joined: Jun 2009

Welcome Suserq to the best place in town for comfort and love!
The web can give you the questions you need to ask but only the doctors will have the answers you seek!!
I too can not open up to family because I will only scare them more. This is the place with the very best medicine you can not buy!!!!

Hugs and prayers,
K

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Are your bones the next place bc goes, beside to the other breast? Anyone? thanks

confused123's picture
confused123
Posts: 241
Joined: Jun 2009

From what I know it usually goes to the ovaries or uterus next. The uterus worries me because Uteran and Breast cancer are in my family. I am ready to go have a hysterecctomy but my doc tells me it will put me into menopause and I can't take hormones. Not sure about menopause at age 33. I look at it like it is better than cancer and inevitable anyway. Anyway enough rambling, I feel like I see a lot of breast to bone cancer since being diagnosed in December. My surgeon and bc doc is sending me to a "high risk specialist" to talk about all this stuff, maybe you could do the same and have your concerns addressed. I am not going to go until after I finish radiation. Too much else going on right now for that.
Kim

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