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Had my appointment with medical onocologist

Ro10's picture
Ro10
Posts: 1356
Joined: Jan 2009

Today was my appointment with the medical onocologist in Illinois. She was very upbeat and listened to my previous experiences with the chemo treatments. She too will give the two drugs over the 8 hours that I needed previously to prevent reactions. My next chemo treatment (number 4) will be June 17th. She is doing more premedication with decadron (steroid) to try to reduce problems. I will take 20mg the night before and 20 mg the morning of. Boy am I going to be wired. I bet I won't sleep the night before (and I remember the hunger when I had double the steroids before!!!!!!!). Then I will get more decadron IV at the infusion center. I will see the doctor and have lab the day before, since the chemo treatment lasts so long. Today they drew lab along with a CA 125. I will be anxious to know what that result is. I have not had a CA 125 since before my 3rd chemo in March. She said I will have a CT scan after the treatments are completed. Then if the CT scan shows something abnormal I will have a PET scan. She said that the PET scan can "light up" up to 3 months after radiation treatments have been done. I was not aware of that. She said I may have more trouble with low blood counts as the bone marrow cannot replace the blood cells as quickly after pelvic radiation. She asked if I needed shots after each chemo, and I told her I had not. It is different going to all these new doctors, but I think I am going to really like her.
My hair is probably 3/4 inches long now. I hate the fact that it will all fall out again. But I just remind myself that it is a temporary thing. People ask me if it is curly. I don't think it is long enough to be curly. At first it was so white, but it is getting darker. I still miss my eyelashes, though. They are very very short.
2/3rds of the way done and 1/3 to go with treatments.

deanna14
Posts: 733
Joined: Oct 2008

You are so close to being finished! How exciting. The Decadron pre med you described is what I have been doing. I don't have much trouble with sleeplessness, but I take Ambien at night. I also start benadryl when I get home from my treatment for the flushing and it of course helps me to sleep a lot immediately post treatment.
I'm sorry about your hair. It had been 5 1/2 weeks since I had my last treatment and I've got some good fuzz going on up there. I know once I finally get this last treatment that it will fall out. I too just have to say.... Oh well, it will grow back! I almost think I miss my eyelashes more. Just looks like beady little eyes. LOL
We are on our way aren't we!

jnmchenry
Posts: 9
Joined: May 2009

Wearing glasses helps with the eyelash and eyebrow thing, without the bother of makeup.

Whatever works, huh?

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

When I had no eyelashes, I found the eyeliner kohl pencils pulled the skin on my lids too much and the oencils were too hard for me to use. So I bought 2 little inexpensive Maybelline powdered eye shadows in the darkest brown and deepest navy blue shades I could find, and I used the soft little brush to smudge a thin line of the powdered shawdow around my eyes instead of eyeliner. It looks a LOT better than my eyeliner attempts. Just an idea to try...

RO: Sounds like you have a good new oncologist & are ready now to finish the last lap in your treatmemt protocol! That's wonderful!

Ro10's picture
Ro10
Posts: 1356
Joined: Jan 2009

My CA- 125 came back at 13. I was estatic about the results. My other results were 427 after the first chemo and 127 after the second chemo. I hope and pray that means all of these treatments are killing all those cancer cells. My other lab results came back good. Wish I could share some of my hemaglobin and platelets with some of you who need them. The treatments really have not effected my blood counts very much.

Still having nausea every morning since I had the internal radiation. Don't know how long that will last. I take a compazine the first thing in the morning.

Hope all of you are doing okay.

deanna14
Posts: 733
Joined: Oct 2008

13 is excellent news! You are a strong lady. My labs were good until after treatment 3, but you have maintained all along. Keep it up through the next 3 treatments. I hope your nausea gets better soon. I love good news!
Hugs

shortmarge's picture
shortmarge
Posts: 295
Joined: Nov 2008

BIG, BIG CYBER HUGS. Great news!

Keeping you in my prayers.

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Hi Ro,

Best wishes as you enter the final lap of treatment.

Mary Ann

cookie1948
Posts: 79
Joined: Feb 2009

Ro,
How wonderful. Wow i am at amazed at how "up" you try to stay and you are BEATING this, i really believe that and 13????????????????? Yippppppppppppppeeeeeeee
God Bless you and many blessings!!!
Cookie :)

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