May 26, 2009 - 8:56 am
My name is Karin and I am 44 years old. 7 years ago I was diagnosed with Hodgkins Lymphoma and underwent 6 months of chemo and have been cancer free since. About a month and a half ago I felt a lump in my right upper arm and the first thought I had was a Hodgkin's relapse. I had an MRI which was suspicious so my Onc sent me to a surgeon who removed the lump on May 7. To this date I still have no definite dx. The biopsy was just sent out for a third opinion to Hershey Pennsylvania to a pathologist who specializes in mesenchymal neoplasms. The possible diagnosis on the first 2 opinions is "Atypical Spindle Cell Sarcoma." I have not been able to find hardly any information on this cancer. I am wondering if anyone else has any info or even has had this cancer. I would be grateful for just about any information right now. I have been able to find a lot of info on sarcomas but not much on this type of sarcoma. My onc did say it is a very rare cancer. They say I have to have radical surgery to have all margins removed, the tumor affected 2 muscles, 1 nerve, couple blood vessels and was attached to my humerus. I see that surgeon on June 12. This is extremely scary for me, I am beginning to think that a Hodgkins relapse would have been much, much better.
Looking for information............anything.