May 25, 2009 - 12:01 pm
My sister-in-law has recently started treatment for a stage IIIA large cell neuroendocrine carcinoma of the lung with a tumor in the mediastinum. She is in her early 40s and a mother to three young children. She would desperately like to establish communication with a survivor of her particular kind of lung cancer and who is currently in remission. I have been scouring the message board and have hardly found any mention of this uncommon type of lung cancer. Even knowing there is a survivor or NED out there would be a great comfort! She is having a very difficult time seeing the light at the end of the tunnel. She has tried connecting with survivors through her hospital, but has not had any success because the hospital hasn't been able to find anyone. She feels it would be very helpful for her to have some kind of contact with someone who has been where she is. If you have suggestions for how she might connect with a survivor of this unusual type of lung cancer, or if anyone on this board who has lived through LCNEC (or knows someone who has) and would be willing to communicate with her (over a message board or live chat or e-mail or the phone--whatever works and makes everyone comfortable), I would be so grateful, as would she. Thank you!