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Another Caregiver

Tayasusie
Posts: 1
Joined: May 2009

Wow. Not sure where to start. I have a need to vent - so I'm just going to do that. If no one answers back, that's ok - just putting my thots into words will help me. And who knows - may find someone out there who will share their wisdom with me :-)

My sister's husband has had Non-Hodgkin Lymphoma for 7 years. Two years ago it metestasized (sp?) and is now very agressive. He finished his SECOND stem cell transplant in Dec 2008. They have 3 children, ages 10, 14, and 16. My sister asked me to come stay with them last fall to help with the kids. Fortunately I am in a place in my life where I can do that. Snowbird - Washington State in the summer and Arizona in the winter. Except for this winter.

My brother-in-law is getting worse. We had really hoped this second transplant would work, but the cancer is so aggressive, those poor baby stem cells haven't had a chance to do their thing. His blood count is so low they won't do chemo. He had a transfusion two days ago, but it still didn't get his platelets up enuf. He is now taking much stronger pain medication - cancer is in his back now, plus a new node by his liver - but not in it, thank the Lord

My sister and I are the primary caregivers. She works in the morning, so I get him breakfast and lunch. We have him on the Dr. Johanna Budwig, flaxseed oil and cottage cheese diet. It has actually helped keep his weight up and it resolved some wart problems on his feet.

Most days I am eager to get up and start the day with him. He is so strong in faith, he is a joy to be around. The last few doctor visits have been disappointing and we are all starting to feel beaten down.

Sometimes I have awful thots. I feel terrible about the pain he is going through - and want it to end for him. But the only way for it to end is to die. I am not wishing him to die....I just want him to stop hurting.

When our father passed away last year, the biggest relief was he would no longer be in pain.

So, guess I should feel better now that I have vented. I think I do...thanks for reading.

God Bless you all

slickwilly's picture
slickwilly
Posts: 339
Joined: Feb 2007

Its a great thing you are doing for your sister, her husband and the children. I had NHL 6 years ago and also have three children. Its a hard thing to go through for the whole family. And your thoughts about pain and death are quite normal. None of us want to see someone suffer. About a month ago I spent 11 nights watching my sister slowly pass on. She was at my parents home and I pulled the night shift so my mother and step father could sleep. It was not easy but it allowed her to pass on with as much dignity as possible and someone was always with her. Your sister is so blessed to have you in her life. Many people on the discussion boards are dealing with caregiving by themselves and its not a job I would wish on anyone. God Bless you and your sisters family. Slickwilly

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