May 09, 2009 - 7:25 am
I was SHOCKED yesterday when I got the call from my Aetna case manager - the insurance company had reversed their long-standing denials of my PET. Two days ago I received a special delivery letter from them that we were to go to a hearing on May 14th about this very issue. Don't know what happened that they changed their mind so abruptly. Just glad to hear. I am supposed to get the official letter (which was being mailed on Friday) next week.
I asked awhile ago about testing - I heard only about CT scans on this board but I had a PET in the beginning and I didn't understand the reason others did not have the same test. I think I understand a little more now. Let me tell you this story.....
A couple of years ago my doctors started using PET scans routinely. After my surgical staging my doc ordered a PET for additional info before starting treatment. It was initially denied but the radiation center was able to get it approved within a couple of days. I started chemo and did so well (CA 125 dropped rapidly and dramatically) that my doc skipped the standard scan midway since he knew I was responding well. So after round 6 he orders the followup PET. I get an immediate denial and the battle begins.....
* I write strong appeal letter to Med Solutions - DENIAL
So here we are. Two and a half months later....lots of paper, phone calls, and angst later... and that elusive PET scan is almost here.
What have I learned??
LADIES, I'd be interested in what YOUR doctors think about PET scans. Do they prefer them but don't order them because they know insurance won't pay for uterine (but they WILL pay for ovarian (what's that about????))?
If doctors do prefer PET or even want them at all, we need to pressure the insurance companies to stop putting this roadblock up. Time is precious in cancer treatment and UPSC is not a disease to mess with. What do you think, ladies??
I'll keep you posted on my PET scan results...it's nail biting time again....
Hugs and prayers to all of you.