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MM in the spinal fluid



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kkra

				          
            Posts: 1

          
          
            Joined: May 2009

          
        					
				
		
									

        			    May 3, 2009 - 5:14pm			  			

			
			
I was diagnosed w/mm in Sept 08. Stage 3. I've undergone several sessions of chemo with positive results and a transplant in march this year. I've been experiencing problems with my shoulds/arms. The nerves that drive the muscles in my shoulders have stopped working. My Dr. says that in about 1% of mm cases the disease finds it way into the spinal fluid. Has anyone else ever heard of this or experienced it. I'm going in tomorrow for a spinal tap to confirm/deny presence of mm. tks.  


‹ Stage 3 Light chain multiple myeloma Hello all. I am new here. was dx nov 08 ›

						
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tj44

				      
	        Posts: 1

	      
	      
	        Joined: Oct 2010

	      
	    				
		
			
October 23, 2010 - 10:16am

			
MM in spinal fluid
			
My wife was recently diag. with MM in spinal fluid.   Also told a very small percentage of patients experience this.   She has had transplants and on Chemo for 3 years.  We were going to participate in trial program since normal treatments are not working for her.  Due to MM in spinal fluid, we can not participate in trials.  Any advice, I am all ears.  We (wife & myself) have elected not to do the lumbar infusion since it has not worked with bone marrow.  Not sure of next step.



			
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