Apr 16, 2009 - 3:19 pm
Hi. I am 28 years old and am quickly approaching my 1st anniversary of surgery. July 2008 I had an Esophagogastrectomy at Duke University. My surgeon removed most of my esophagus and the upper part my stomach that connects to the esophagus, since my Stage I tumor was in both the lower part of the esophagus and the upper stomach. My tumor was very rare and was non-responsive to chemo so I had no choice but to have major surgery.
Although I had a rough recovery (wound dehiscence, extreme nausea, aspiration pneumonia, etc) I am doing very well now and have been medication free for the last 2 months. I have been on a normal diet for several months now and have been working on my overall all physical fitness as well as keeping weight on. I was given a fairly clear bill of health back in January for my 6 month check up. My doctors have told me and my husband that I need to wait at least a year after surgery but otherwise and clear to start trying to have more children (we have a 9 year old son). I have an appointment with a Maternal Fetal Specialist here in a few weeks for preconception counseling.
My question is simply this, has anyone else had this surgery then gone on to have children?? I have not found anyone nor does my surgeon or GYN know anyone that has. Most people I have read about have been past their child bearing years or male. I think women make up only about 14% of those with esophageal cancer. I know that I will be considered high risk but I'd like to hear if anyone else has been down this road too. I am sure I am not the ONLY one, so if you know someone who has I’d be very greatfull to hear about it.
Thanks for listening!