Mar 29, 2009 - 2:51 pm
I had Hodgkins in 1980 as a senior in high school at age 17. With all the advancement in treatment I almost feel like I had Hodgkins in the stone ages now. I am now 47 with a wonderful family. My chest and neck were radiated. Five years ago I was told that I had pulmonary fibrosis(scar tissuein my lungs) probably from the radiation. It is kept under control for the most part with asthma medicine. I started having reflux about 3 years ago and it has been under control with reflux medicine until about 4 months ago. I am now having a lot of gi issues. My gi doc wanted to have a surgical procedure done to stop the reflux but the surgeon does not want to do it because of the radiation to the esophagus and he would be trying to do this procedure with unhealthy(radiated) tissue. They did further testing last week and determined that my esophagus is not functioning well at all. They are saying that it is the radiation. So now they are saying they cannot do the surgery to stop the reflux but they want to do something because they do not want me to continue to reflux and aspirate and lose more lung capacity. This is a horrible health nightmare that has come back to haunt me again. Thirty years of remission is awesome and I am very grateful but having to deal with all these late side effects is not very comforting.