Mar 26, 2009 - 12:43 am
It's a new day in cancer care. Today I got in to see a Memory Clinic here in the city and while I was there I talked to the nurse about my issues with 'chemo brain' thinking oh man I will have to tell her what that is and go into it all over again. However, much to surprise she acknowledged the syndrome as if it was almost a given and then went on to tell me that they had a guy come into the clinic for diagnosis with 'chemo fog' and the neurologist who saw him then told this nurse that they do see it in long term survivors and some with even shorter times out of treatment. I nearly fell off my chair. I remember the days, all too well, when I would mention this fuzzy thinking and an oncologist asked me if I had thought of seeing a psychiatrist about it. Grrrrrrrrrrrrrrrrrr. But the good news is that they are starting to understand as greater numbers of us come forward, presenting them with similar symptoms they can't ignore any longer. Even the damage to my heart from the adriamycin has just been started to be talked about, at least hear, not too long ago, in the medical field - validating the patient. It's a new day in cancer care indeed.
My results won't be in on what the diagnosis is, I seem to do pretty well in inital memory and cognitive testing except for a few areas where I just hit a wall with my fuzzy thinking. Man it's weird when that happens, right out of the blue, things that were so easy to handle cognitively years ago - um, not so much now - but now there seems to be validation that at the very least I may have an answer soon as to why. Hope they don't hang it all on stress but we will see. Blessings, Blueroses.