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Endometroid Adenocarcinoma

Mary15819
Posts: 8
Joined: Mar 2009

Hi Everyone,

I have been reading your messages and I wish I had as much information as you. I think I was in such shock when I heard cancer that I didn't even know what to ask. I just wanted the cancer out. The complete hysterectomy was completed March 19, 2009. I am now waiting for the pathology report

The original biopsy reported: "Endometrium (biopsy): Small foci of well-differentiated endometrioid adenocarcinoma arising in a background of extensive complex atypical endometrial hyperplasia".

I was referred to a gynecological oncologist who has made quite a reputation with his use of the divinci assisted surgery. My surgery was with the divinci. I live in Maryland and the surgery was performed at Holy Cross Hospital. I am very nervous. The doctor said he wouldn't really be able to tell me anything until the pathology report was received - although he has a good feeling about it. I had to wait a month to get the surgery scheduled!!

I know I am just rambling but I hope this makes sense to someone. Any Has anyone been diagnosed with this.

Thanks so much for reading my blog - Mary

kellyw314
Posts: 51
Joined: Jan 2007

HI Mary,

I had your diagnosis in May of 2006 and was classified as stage 1-C following path reports - DaVinci was not an option than and I had a full abdominal cut - recovered very quickly and was referred to radiologist because there had been 60% penetration of the uterine wall - I had 27 external radiation treatments and have been in remission since surgery - saw gyn/onc every 3 months for internal exam for first 2 years and stretched to 6 month check ups at my 2 year anniversary of being cancer free - have had some residual bowel issues since radiation but for the most part a non-issue - hope you are stage 1-A, which usually means no further treatment other than periodic follow-ups with gyn/onc

Mary15819
Posts: 8
Joined: Mar 2009

Hi Kelly

Thanks so much for responding. It is nice to hear that someone has been where I am now. I am so glad that you are cancer free at your 2 year anniversary. Congratulations!!! I pray you will continue to stay cancer free and that I will be too. I will let you know the stage when I find out. Thanks again, Mary

maryln3
Posts: 65
Joined: Jul 2009

did u have nodes biosy? weer they removed

maryln3
Posts: 65
Joined: Jul 2009

did u have lymph biosy? were they removed

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

No real answers from me, just a HUG. I think we all hold our breath when we are waiting for test results and pathology reports. Try and breathe and to put this in God's hands. Whatever it says, there will be a battle plan. Please let us know when you find out, and get the pathology report to take home. We can help to translate what it means, as there will be a ton of subtle information in there that will be important for you as you make decisions about your care as your treatment unfolds.

Mary15819
Posts: 8
Joined: Mar 2009

Hi Linda,

Thanks so much for responding. I do believe it is all in God's hands and that everything happens for a reason. BUT i'm still nervous. I guess it's the fear of the unknown. I will definitely share the pathology report and ask for your translation. Thank you again for responding. It is just nice to have someone to relate to.

cookie1948
Posts: 79
Joined: Feb 2009

Linda,
I am praying for you and hoping that you can finish your chemo SOON, and get your platelets up.
I have some good news. I took my mom today to post op with oncologist/gyn and the lymph nodes they tested came back cancer free. He has seen no invasion and said there was a small polyp inside the uterus but went no further and was staged as 1a, and said all my mom needs is follow ups every 3 months. He did not suggest chemo, and said if she was 35 he'd say go for it, but the studies don't prove for the kind of chemo he was thinking was for this type of uterine cancer it was a good idea for an 85 yr old, and we all agreed. He said she would probably get pretty sick and at her age and good pathology reports now that he felt good about saying no chemo.
Thanks for your support. He said this was caught very very early thanks to her primary referring her for gyn exam quick after her spotting for a week or two.
I continue to look at everything on this discussion boards as it gives me strength for just anything or any type of cancer one may get or have.
Fight and hang in there, and hope your counts and strength are up SOON. I have not seen any repsonses to mine, but i like to read all of the postings.
Linda :) COOKIE

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Cookie/ Linda,

Best wishes to you and your mother. I'm glad things worked out for her and she does not have to go through aggressive treatment. It's about quality of life too. Sounds like she will have that and be watched closely to find any changes.

Mary Ann

cookie1948
Posts: 79
Joined: Feb 2009

Mary Ann,
Thanks so much for your best wishes. Mom being 85 she would probably have refused chemo anyway, and at this age you are so right, quality of life. It's been 2 wks since her hysterectomy and she is very very tired and her incision is quite red, but oncologist/gyn said to watch it but he thinks it will be ok. stage 1a. i am so happy for her, before her surgery should could run circles around me. haha, dr said if she was way younger he would say go ahead and have some treatment, but he really really thinks it's not necessary as he said the studies haven't proven it would help stage 1a. so.............again thanks so much.
Cookie
I wish u the best, how are u doing? daisy366 aka Mary Ann? Please keep us posted.
thanks again.

Ro10's picture
Ro10
Posts: 1484
Joined: Jan 2009

That is great that your Mom's sttage is 1A and she will not need any further treatment at this time. Let's pray that continues for her. I am glad it was caught early for her. You both must be very relieved. The follow-up check ups will be very important for her. Hope you too are keeping up with your check-ups. Good luck to both of you.

cookie1948
Posts: 79
Joined: Feb 2009

Thanks for the good wishes, and ya know what? I should be going in for check ups like u said. I had a hysterectomy about 10yrs ago for excessive bleeding, but no other problems. they removed uterus and left ovaries in, so i do get scared hearing about all of the cancer that females get. But i thank you for your concern, and you are soooooooooo right. Please keep me posted and others how u are doing? Where are u at in your treatment? What stage did u have?
God Bless you and all of the wonderful women on here. I will continue to read all of your posts. I need and want your information.
Thanks,
Cookie :)

cookie1948
Posts: 79
Joined: Feb 2009

Are you doing ok? Will u be dancing with NED soon? or are u already there?
Cookie :)

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I'm so HAPPY for you!! What wonderful news: Stage 1a!!! You tell your mother that she has a WONDERFUL prognosis and give her a gentle happy hug from me and the UPSC Sisters. She's the first Stage 1A that I think we have in this group!! She's my hero for catching this so early!((((Cookie)))))

nursey420's picture
nursey420
Posts: 53
Joined: Mar 2009

I know how you feel. I was told at work by my GYN that I had cancer was scheduled to have surgery with her a few days later but with the cancer that changed. I was freaked out to say the least. Had to wait for 2 1/2 weeks to see oncoligist Gyn. Then had to wait 2 1/2 weeks more until surgery. I also had Devinic robot it is great I recovered so much faster. I knew when the surgery was over it looked like a stage llb. It took 10 days to get the patholigy results and i was so scared waiting. It came back and my doctors nurse called me. I have stage llb the cancer was into the cervix and radaition would be needed. Then I had to wait to see the radiaiton doctor. But the good news is started radiaiton today 32 days after surgery. Please be patient,if you don't hear any thing at day 10 call the docotrs office. Oh by the way asked for the post op notes and for the path report. I started a book with all of my notes and appointments and docotrs it really helps. I am a nurse and never expected cancer to happen to me. Good Luck.

Mary15819
Posts: 8
Joined: Mar 2009

Thanks so much for your information and pointers. I will definitely ask for the reports and notes. Do you know how many radation treatments you will need? Do they hurt? Are there side effects? I am trying to be patient. I believe this whole experience has been a lesson in "patience" for me. I was always the control freak. Now I know that God has a plan for me and I am learning to wait to find out what it is. Please stay in touch. I will let you know what I find out. I have an appt. Friday. Like you, I never expected cancer to happen to me. There is none in my family and I think I was in shock for weeks. I will keep you in my prayers. Thanks again for writing.

nursey420's picture
nursey420
Posts: 53
Joined: Mar 2009

No Mary radiaiton does not hurt. I had #2 today. I lay on my stomach (there is a opening for it to fall into) and close my eyes and 7 minutes later it is all done. I wear mens PJ pants and just pull them down to my knees. The hardest part is the noise the machine makes. It can be loud. The people at the cancer center where I go are really nice they answer all my question even if I ask them several times. My doctor beleives in preventive treatment. We are treating side effect before they happen. Biggest problem is skin care. I use a good lotion on the pelvic area 4-5 times a day and use a water bottle to wash my peri area after every time I use the bath room. Just know that there are many people going thur the same thing.

Mary15819
Posts: 8
Joined: Mar 2009

Thanks for the info. It sounds like you have a wonderful doctor. I will keep you posted as I learn more about the path I am to take.

HighFavor
Posts: 3
Joined: Mar 2009

This is my first post. I had total hysterectomy on the same day as you! DaVinci was planned initially and then abandoned because of the size of the uterus. I am getting around OK and have no regrets. My path report was great (I think) in that lymph nodes, omentum, cervix, etc. were all clear although "washings" deemed atypical hence adjuvent treatment.

Like you I have been slightly overwhelmed as everyone here seems to be so well informed while I don't even know what I need to know, ask or consider! I could determine intially that serous was serious and i am learning more and more from these posts. I have to read and re-read some sharings to try to catch on.

I have a feeling that all of these super smart posters were as un-informed as we are once upon a time! You are encouraging me to hang in here and I'd like to do the same for you. My next steps are radiation then chemo.

Please know that I don't even know what I don't know!! I do have a fond feeling for all of these kind souls who are guiding us and I do believe that we'll get where we need to go well informed, well prepared and well supported. Call on your "big-girl" faith and try not to be too nervous. I am sending prayers for you because you're sort of my new twin!

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

Did I read your post correctly that you have papillary serous cancer in the uterous? (UPSC?) I am so sorry to 'meet' you under these circumstances, but so happy you have found us. One of the threads in the Discussion Board, where you'll see about 300 posts, was our oldest original thread under 'Gynecologic Cancers'. When our thread got too long, the webmaster here gave us our own Discussion Board so that we could better organize our posts for those who come after us. But if you want to read a 'good story', reading that long long post, like a book, would be the place to start. Because of it's length, that thread loads SOOOO slowly, so you may want to click on it, and go put tea on or something, and then come back until it opens. (That same s-l-o-w loading occurs when you go to Page 2.) You may have to spend a couple nights on it, but it is a very good read, and the most up-to-date REAL TIME discussion of UPSC you will find online, IMHO. Our best research is there and discussions of all of our treatment side effects and how we dealt with them. Cancer has its own vocabulary and I knew NOTHING about cancer until I got it. But you learn fast when you want to be an active participating member in your own cancer treatment.and trust me, you DO want to advocate for your own care and treatments regime. (((((HighFavor)))))

Mary15819
Posts: 8
Joined: Mar 2009

Thanks so much for your message. You are ahead of me. I still don't have the pathology report to know what my next step should be. I called today and it wasn't in. I have a dr. appt. in the morning. Hopefully I will learn more tomorrow.

This will show you how little I know. Please bare with me. What are washings? Did your Dr. give the cancer a stage and grade? It's great your lymph nodes are clear!!! Now I don't understand why you need further treatment - radiation and chemo?? Don't feel obligated to answer, I am just trying to understand all the things I have yet to learn.

I feel like you are my new twin also. It is nice not to feel so alone. My prayers go to you as well. We will get through this. Please keep in touch. What is your name?

HighFavor
Posts: 3
Joined: Mar 2009

Mary, Here's hoping you got clear, useful info at your appointment this morning. We have to get copies of everything that we might need to review later. I felt that HIPPA (or whatever the privacy acronym is) was everyone's reason for not giving me what I wanted to see about me! I did learn that the "washings" results might be a separate or "left out" part of the path report!

An extremely elementary understanding (or misunderstanding) that I have so far is that washings are samples of fluids extracted from the area (cavity?) where the cancer was found. I think that some kind of fluid is squirted which interacts with cells, etc. in the area, samples collected and studied. I think of the High School Chem litmus testing episodes to have it make sense for me. Further treatment (Rad and\or Chemo) (everyone says adjuvent therapy when the medical folks don't want to spell it out!) is both "helpful" and "just in case." I understand that "looking back" studies suggest that surgery + adjuvent therapy outcomes may have been more beneficial in UPSC cases.

I am convinced that after we read the long posting that Linda refers to we'll be far more aware. I found this CSN site 2 days before I received the path report and felt the short posting was all I could really absorb. It did better prepare me for the appt. Thanks so much Linda and of you other new sisters. One thing I am thankful for was my doctor's suggestion that I get the path report reviewed by another "expert" before deciding on an approach. That 1st and 2nd opinion, combined with opinions from personal "family medical" folks affected my decision making.

My next steps are to learn more in depth info about the UPSC treatment that I'll have. We chose between the options listed below. I'm going with 2 drug and vag cuff. What I do know I learned here - thank you, thank you, thank you. Please correct any mistakes that I have made in this post.

---- 2 drug (paclitaxel + carboplatin) vs 3 drug TAP
---- pelvic XRT vs vag cuff. [addressed the sex after rad issues thanks to you gals!]

My first victory was to conquer the pure fear I had initially of the words! After I had my "big-girl" talk with myself and decided "I'll be darned if I'm going to let a word scare me!" I'm getting better, I pace myself better. I also try to balance my need for more words, more info, more distinct delineations with my need to respect my own feelings - especially those that require me to be less "efficient and effective" than I always thought I needed to be! I'm the type that will go in search of enough info to make me crazy if I'm not careful!

Hope you're having a good and grateful day. All of this stuff brings some silver linings but you might have to lift a few rocks to find them. They are really there, twin, just remember to look! God bless!

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Thank you High Favor -sorry don't know your name. I like what you said in your last 2 paragraphs. We do need to be grateful and continue to look and be open to those silver linings.

God bless you on your journey. Mary Ann

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