Mar 13, 2009 - 10:04 pm
My son (age 25) has been had surgery and is currently undergoing chemo treatment for a high grade, undifferntiated sarcoma that originated in his stomach. By the time the tumor was removed it was the size of a vollyball and had invaded his liver, pancreas, lung, and gallbladder. After surgery the tumor grew back as big as it was originally while waiting for diagnosis and treatment to start. He is now on his third round of chemo which involves a week long hospital stay each time he gets treated. He is having such a rough time with all of this. Even when he is not getting chemo he sleeps a great deal and has very little appetite. It seems the only thing he wants to do is watch tv and sleep. He has had lots of supportive friends that try to cheer him up and get him moving but nothing seems to work. I guess he just doesn't feel good enough to do anything. He is being treated at USC and has great doctors. They say he is improving but I'm just not seeing it. Anybody out there with a similar experience during treatment? Also, are there any survivors out there that were diagnosed with undifferentiated sarcomas? It is such a rare type of sarcoma and I have not been able to find much info on it. My son has been so sick for the past four months that I am just beside myself as to how to help him. I'm trying my best to stay positive and upbeat but lately it has been really hard. I would appreciate any advice anyone has to offer.