Cancer Survivors Network

Angelstar - How are you doing now?

hi well i went for alot of testin fo rthe bone marrow they told me they found 3 possibly matches im still waitin to do it might be this month or next month im very very scared tryin to find people that have gone thru it and have lived thru the transplant

Hello,

I had a BMT about 7 months ago Stanford University in CA. I am doing well and cancer free! Please email me with any questions I would love to help!!
cslpainthorses@hotmail.com

Sarah

HI,
I had just gone through autologous stem cell transplant in nov. 2010. Till now i m good & feeling normal. But i m still worried that in future this disease shld'nt come again. so anybody here to boost up my power i.e any succesful case of autologous transplant.

I underwent a Bmt, for CML, on Feburary 22, 1992 and have been Leukemia free ever since. Treatment for Leukemia has advanced so far, since then that the survival rate has drastically increased. I read a book about transplants, that was written by a mother of a transplant patient, written five years prior to my transplant. The problems that her daughter went through were three times as bad as what I went through. If you would like some further information, please call me.

Hi! I read your post on being a long term survivor of a BMT. That's amazing.

My husband (before we were married) went through a bone marrow transplant for ALL when he was 19 years old, back in 2002. Everything has been great since (knock on wood)! It's been about 9 years since the transplant, and for some reason as his wife, I am suddenly becoming so worried about him...unexplained worries & anxiety I guess.

I keep reading things online about late side effects of chemo/radiation, and everything I read scares me, which I think is causing the stupid worries. As a survivor, have you ever had late effects of your treatment? I have to believe there are plenty of people out there who have a bone marrow transplant and go on to live completely normal and healthy lives just like people who never had Leukemia in the first place.

Any suggestions or thoughts?

hi, i read your post about your husband and am very happy to hear he is cancer free. my brother is 29 and has ALL. he's getting an allogeneic bmt in a few weeks. im really freaking out and was wondering if you had any info to share with me about what to expect? anything would help, thank you so much :)

Hi angelstar - your worries are justified but there are so many people like me, transplant for CML in 1197 - in great health, back to running biking etc within two years. It is a tough but very doable process. Look at the bright side, how would you like to have no donor? Attitude is critical - the tranplant is the answer not the problem. Your body is going to want to know from your brain that you want to survive. Surround yourself with love, read Bernie Siegals first three books - just go to Amazon or google him - he is one reason I made it, there is no doubt.
In the unit its one day at a time and like the Buddhists dont worry about whats around the next corner. Take in the love of the nurses etc and marvel in what has gone into this miraculous process.
Peace,
Kip

hi well i went for alot of testin fo rthe bone marrow they told me they found 3 possibly matches im still waitin to do it might be this month or next month im very very scared tryin to find people that have gone thru it and have lived thru the transplant

I have seen this posted before. Its a blog about a woman that had a BMT. Check it out if you wish. She tells her story.

http://www.caringbridge.org/visit/leamorrison

My name is Jenny and Eight years ago my younger sister Michelle was diagnosed with Chronic Myeloid Leukemia (CML). Three weeks later we found out that I was a match for her. She was 21 at the time, and I was 23. She is now a very healthy 30-year-old woman. You can make it. You need to take care of your self though. It's very important to make sure you walk a lot after the transplant. Your not going to want to, but it's a necessary. If you have any questions feel free to contact me at jenny@cancersreality.com. Take care. -Jenny

I'm going to have to go through a BMT also. I have to give my doc my final decision next week. Would like to hear others stories, and also, angelstar, would like to know what's going on with u and how you're doing. Keep me updated if u can.. sounds like we'll be doing everything around the same time. Maybe we can help eachother. Get back to me.. buguhboo25@yahoo.com, name is Monica by the way.

Im in the process of finding a match amongst my 2 siblings, my oncologist strongly suggest stem cell transplant after having in remission from the first induction therapy, i was diagnosed may 29,2009, i'm 44 years old, i am scared too and confused what to do. i hope everything is alright w/ you angelstar if you have decided having BMT, goodluck and godbless

I was my sisters bone marrow donor 8 years ago. I would suggest a stem cell transplant, everything I've read lately suggests that there is a greater chance for survival with a stem cell transplant. About three weeks after the transplant my sisters platelets weren't coming back very fast. Then they told us if we would've done the stem cell, instead of the bone marrow they would've came back faster. (ask your doc.) Also its less invasive for your sibling. If you or your siblings have any other questions I can help with. We started a website called cancersreality.com, my contact info is on there. Take care. -Jenny

Hello, my name is Christianto Perdana. I am very sad to hear you had relapse. But always believe you will get better soon and always prayer to God ya because I believe the healed is only from God ^^V

I had suffered AML too, same like you and had Bone Marrow Transplant. If you don't mind, I want to share my experience about "How to take care Bone Marrow Transplant patient's". You can look at my blog in this site or if you have trouble to see this, maybe you also can look at http://spirit2cancer.blogspot.com/ . I hope this article can help you to cope better with the BMT's processes. ^^V

I hope you can do the Bone Marrow Transplant and never give up to your sickness. Always believe and give all things to God and I believe you will get better soon and can be healthy as another people and together with your family ^^V.

If you have question, you can send me e-mail at : arabicontamus@gmail.com . I will answer with what I know and with my experience about Bone MArrow Transplant ^^V. God Bless ^^V

I was diagnosed with AML in Jan of 2008 and had a bone marrow transplant March 18th of 2008.
I would be than happy to answer any questions you might have. You can email me at debbiereznicsek@hotmail.com

hey..i am an ALL patient. was diagnosed a on 3rd sept, 2010.
i have been on chemo -the induction phase for the past one month. after two cycles my counts went very low, so they delayed the third cycle. my Dr. said that counts are low coz of sensitivity to the chemo, which is a good sign in one way. anwya as my counts were not recovering as they shud have been normally, they did a bone marrow aspiration to find out what was happening miway in the induction pd. y bone marrow is clear so i am in remission. i am scheduled for my 4th cycle of chemo omorrow which will be the last in teh induction phase. even i am doing ok in my chemo ..with not very high adverse effects except a bit of nausea and loss of appetite after the 3rd cycle. but i still dread vincristine, which i think makes me feel lousy..though i recover after 2 days.
what should i expect in the days to come...can someone plz tell me if a bone marrow transplant should be used as the first option or the last option? i have 5 HLA matches with bro' out of total 6. is that a good result for transplantation? or i'll have to look for a 100% match?

Kiran... I can help. Or at least I can tell you what you can expect over the months to come. Please email me at sburbank35@aol.com