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DCIS Stage 0/surgery

lauren08
Posts: 29
Joined: Jan 2009

I was diagnosed with DCIS stage 0 on 12/30 after a stereotactic biopsy.
I have been back to see my surgeon & I am having a wide excision localization with wire guide in mid February.

I am trying to just think this ONE DAY AT A TIME while I continue to work my full-time job.
My Dr. said after the surgery we will wait & see what the lab results are.

Is there anyone out there that has this & NOT Needed Radiation? I don't have an oncologist yet. I just don't know how in the world I would be able to handle working all day then going to radiation 5 nights a wk for 6 wks & still be able to function at work. I am in the field of medicine. I don't think I will be able to handle it psychologically.

I have read SO MANY WOMEN have opted for the masectomy. AM I the ONLY one who is strongly against a masectomy?

I have heard about second opinions but I am very happy with my Surgeon. How do you get a Second Opinion on lab results?

Any feedback is greatly appreciated.

Chellebug
Posts: 134
Joined: Nov 2008

Hi Lauren,

I was not the same stage as you; but from what I understand, if a lumpectomy is chosen, it is followed by radiation. The idea is that the prognosis for a lumpectomy f/b radiation is the same as a mastectomy without radiation. The prognosis is not the same if you opt out of radiation. You would need to speak to a radiation oncologist.

I did have radiation for 28 treatments. It is not so bad in the first few weeks, other than the nuisance of going in every day. You'll get some fatigue later in the treatment, but it is managable.

When I was diagnosed, I took a good look at my schedule and my commitments/responsibilities. I kept some and dropped others. It was good to have something to do that was outside of 'cancer.' Too much empty time makes the mind wander....that's not such a good thing. I think you will be able to handle work both physically and psychologically. That's not to say it will be a walk in the park. But it is managable.

I don't know how to get second opinions on lab results.

I'm sorry that you have to face the new year with this. But you are very wise in taking it ONE DAY AT A TIME.

Chelle

Eil4186's picture
Eil4186
Posts: 967
Joined: Dec 2007

Lauren, I had a lumpectomy. My cancer was stage 1 with negative nodes. At first I panicked and asked my surgeon for a mastectomy but he took the time to go over the stats on the longterm studies on mast. vs lumpct. He explained that as long as the lumpectomy has clear margins, and the cancer has been removed, you add radiation, then it is just as good as a mastectomy in terms of long-range survival. And, it doesen't make any sense or do any good to remove perfectly healthy cancer free tissue(entire breast) along with the tumor.

Also you can have your slides sent to any lab/hospital you want to get a senond opinion from another pathologist.

Eil4186's picture
Eil4186
Posts: 967
Joined: Dec 2007

Lauren, I had a lumpectomy. My cancer was stage 1 with negative nodes. At first I panicked and asked my surgeon for a mastectomy but he took the time to go over the stats on the longterm studies on mast. vs lumpct. He explained that as long as the lumpectomy has clear margins, and the cancer has been removed, you add radiation, then it is just as good as a mastectomy in terms of long-range survival. And, it doesen't make any sense or do any good to remove perfectly healthy cancer free tissue(entire breast) along with the tumor.

Also you can have your slides sent to any lab/hospital you want to get a senond opinion from another pathologist.

mimivac's picture
mimivac
Posts: 2147
Joined: Dec 2008

Lauren,

I opted for a lumpectomy as well. My surgeon made it clear that it was a perfectly viable option that would not affect my survival rate. I am stage 2, with clear nodes. As for needing radiation, most people who opt for a lumpectomy will need radiation to make sure that the breast tissue there is totally clear of cancer cells. But everyone's situation is different, and you will discuss these issues in detail with your surgeon and/or oncologist and radiologist. Please don't start worrying yet about how you will handle radiation, your schedule, etc. It will seem overwhelming that way. Take it slowly and give yourself the time and permission to take care of yourself and make the best decisions you can. You will be able to handle whatever comes your way.

Mimi

lauren08
Posts: 29
Joined: Jan 2009

Thank you Girls for all your thoughtful words and advice. It means so much to have you to talk to because people who are not in this situation don't know what to say or almost always seem to say something to make me more upset.
Too many questions that I don't have the answers too really works on my nerves.

Today I just wasn't my usually bubbly self at my job & a regular customer noticed & said something. I just replied I didn't feel well all along thinking buddy, if you ONLY KNEW!

This is why I feel its going to be way to hard to deal with this & still be there if I have to go through Radiation. Of course I'm not financially secure so I Need to work for my health insurance. The woman at my Dr's office said something about a medical leave if it came down to it. I was out 6 wks for a hernia operation several yrs ago which was my only operation ever other that giving birth to 2 children naturally over 20 yrs ago! I was brave then but Now I feel like I'm such a big baby in my older age!

I will try to hang in there emotionally. My surgery is scheduled for 5 wks away.
Lots of time to have a million different emotions & moods! Haha!!

Please keep in touch. I need the support.

Thanks again.

cruf
Posts: 931
Joined: Oct 2000

Hi Lauren! I was Dx 8 years ago with DCIS Stage 0. I initially had a lumpectomy but my margins weren't clear so I was given the choice of having radiation and hoping all the cells were gone or having a mastectomy and knowing all is gone and not needing radiation. Both my husband and I decided that I should have the mastectomy and reconstruction and not go thru the radiation and worry about whether the cells would return. It's 8 years now and I never once wished I had done it differently. In fact, Lately, I've been wondering if I should have had both taken and then not worry about it again!I think the lumpectomy was the right way to go initially, but when the margins weren't clear, I didn't want to worry about the radiation and what if....You have to do what is best for you. As I said, I'm happy with the way I did it. Please, if you have any questions, feel free to e-mail me here and I will try to help you. Good luck with your decision and surgery! HUGS!! Cathy

Jadie's picture
Jadie
Posts: 727
Joined: Mar 2004

Hi Lauren

Radiation is very doable. I too had to work through treatment for insurance and just to live. I scheduled my radiation for early in the morning and then off to work I would go. I got along very good. A little tired by the end but I think it was everything (dx, chemo and rads) not just rads.

If you feel that you need help with emotions and nerves I am sure you onc will give you something. Zoloft and Xanax worked wonders for me.

Do be careful who you talk to. Surround yourself with family, friends, people you love and positive people. I will go a step futher than one day at a time and tell you to live in the moment. You have caught your cancer very early and you have a lot to be thankful for.

Please do keep us posted. We are here for you.

Hugs
Jadie

young_one's picture
young_one
Posts: 71
Joined: Nov 2008

OK, so I am not in the same boat that you are but I had both. Mastectomy and radiation. I am just going to echo what Jadie said- Radiation is very doable. It lasts maybe 10 minutes. It won't take up a ton of your day or evening.

noway
Posts: 1
Joined: Mar 2009

Young one,
I take it you had positive margin after the mastectomy that prompted the radiation? If so, what is the size of the positive margin? Or was it not DCIS but another stage and radiation is the standard of care?

I had my mastectomy with immediate reconstruction in Jan 09 with a 2cm positive anterior margin, 1mm close margin in the deep area and 2mm close margin in the lower inner quadrant. Based on the large size at the anterior margin, the other areas of close margins and my relative young age (early 40s), all 3 radiation oncologists I saw are recommending 5 to 6 1/2 weeks of full breast radiation. I'm most worried about the chance of getting secondary cancer to the skin, muscle, lung and bone 15-20 years down the road although they say that this is only 1%. I'm not sure that there is enough data out there to really back up the 1% (I think it's higher and if this is the case, it may tip the scale if one weighs it against minimizing recurrence) since my online searches and discussions w/ the doctors have indicated that there are not many cases with mastectomies followed by radiation for DCIS. Did you (or anyone else on this board) uncover anything more about secondary cancer when you made your decision to receive radiation?

dbs1673
Posts: 205
Joined: Sep 2008

I also had a diagnosis of DCIS, had a mastectomy, and also needed radiation due to the margin. Mine reading was .7. I certainly don't want to minimize your concerns about what my be down the line in secondary cancers but I have no regrets or doubts about following my oncologist's advise to have the radiation. 36 rounds of treatment is what I needed to know that I was doing everything humanly possible to keep the beast away. I had other factors to consider as well since I had the expanders put in at the time of the mastectomy. Fortunately everything went fine and there was no damage done to the expanders or the process other than it has taken longer to move forward with the implants. My position all along has been that this is not a dress rehearsal, this is the real thing....do it right the first time for there can be no second time. At my check up a couple of weeks ago, my surgeon asked me if I had any regrets about anything thus far. I can honestly say I don't. What ever you decide will be the best for you. good luck

swalters
Posts: 33
Joined: Jan 2009

Lauren,
You are not the only one who only wanted a mastectomy as a last resort. I did not want one
either and did not need radiation or tamoxifen.

I was diagnosed with intermediate grade DCIS in June of 2007. The first surgeon I went to said I would need a mastetomy. I asked for a 2nd opinion. The 2nd surgeon said she thought she could do a wide excision and have it look acceptable.

I had surgery in December of 2008. My pathology report said they did not get clean margins. I consulted with Dr. Michael Lagios, a world renown DCIS expert pathologist to get a 2nd opinion. Turns out he disagreed with my post-surgery pathology report. He said they had gotten all the DCIS and I did not need more surgery. Pathologist often interpret the same data differently.

Dr. Lagios has a website and a breast consultation service. My surgeon told me about him. You just call the number on his web site and make an appointment to talk to him. You can also have him review your pathology slides if you want a 2nd opinion now or after surgery.
His assisant Sheila will call the lab and request they send your pathology slides to them. If you have insurance, it will probably cover most of the cost.

Dr. Lagios (with Dr.Mel Silverstein) also developed the Van Nys Prognostic Index (VNPI) which is based on your age, the size and grade of your DCIS and if they get clean margins. If you fit the criteria and get a low enough score like I did, there is very little benefit to doing radiation. (Since my calculated risk of DCIS recurrence using that scale was only 3 percent, it was not worth it to have radiatin to reduce my risk by one half.
You can google the Van Nys Prognostic Index and see if you might qualify for skipping radiation. By the way, you can only do radiation once.

Recent studies on tamoxifen are showing it is of questionable benefit also. I say do the research and then do what you are comfortable with.

Hope this helps. No matter what you choose you have very good odds.

You are not alone.
Swalters

peppopat's picture
peppopat
Posts: 1
Joined: Jan 2011

Hello Swalters.

I ama regular to breastcancer.org. While scanning the different threads I came across your name, suggested to me by another victim, along the way. Is it my understanding that you were diagnosed with DCIS and have opted out of surgery? I ask because I have not found someone, like myself, that has known of DCIS for a while now with no plans for surgery in the near future. Speaking from my own experience with the "wait and see" approach, the intentions for treatment have become VERY fluid.

So, my short question is, " have you opted out and how long have you known of your Dx?

Most appreciative for your time,

lauren08
Posts: 29
Joined: Jan 2009

Didn't have my surgery yet but just want to know if anyone has had DCIS Stage 0 & gotten clear margins after a wide excision & not had Radiation?

I know these will be questions for my Dr. but I want to hear if anyone has done this differently.

I have read that they usually follow up the surgery with the Rad trmts.
I heard you can only get Radiation trmts once so if you can clear margins can Radiation trmts be skipped? My question is if you do Rad trmts & then the cells come back wouldn't your only possible option at that point be masectomy?

From what I can remember at my visit with the surgeon discussing my upcoming wide excision I think I heard him say that if it comes back with clean margins we are done, & if there is more around the perimeter then the Radiation?

I have several wks before the surgery but I am trying to gather as much info as I can so whatever my lab results are I can make an educated decision.

Thanks you for any & all responses to these questions.

mmontero38's picture
mmontero38
Posts: 1523
Joined: Dec 2007

Hi Lauren: I opted for a mastectomy, but from speaking with other survivors, any time you have a lumpectomy, you automatically get radiation, even if your margins are clear. My niece had clean margins and she had to go through radiation also and no chemo. Hugs Lili

swalters
Posts: 33
Joined: Jan 2009

Lauren,
You do not need to get radiation if you get clean margins and have a score of 4-6 on the Van Nuys Prognostic Index.

Please read my comments on Jan 14 for a more thorough explanation. There can be serious side effects with radiation. Please email me at lovetennis60@aol.com if you want to discuss further and I will be happy to discuss this with you.

You have many options. Do what you are comfortable with,
Sandie

GreeneyedGirl's picture
GreeneyedGirl
Posts: 1003
Joined: Sep 2008

Lauren, hopefully this helps a little in your question and answer needs--I had dcis stage 0 and contained-I had a wire location procedure done to give the surgeon a "map" of clean margins for the lumpectomy (which was large)followed shortly by 6 weeks of radiation. 2 years to the date of diagnosis microcalcifications showed up in my mammo in the same breast, different area, and my option was a mastectomy. Breast cancer has not run in my family, I am the first and only so far to be diagnosed.
Hope i've helped a little.

young_one's picture
young_one
Posts: 71
Joined: Nov 2008

There are also serious side effects to not treating cancer.

warriorxena
Posts: 4
Joined: May 2008

I was diagnosed with Stage 0 DCIS and had two lumpectomies to achieve clean margins. I was about the long-term effects of radiaion, so I got second opinions from reliable oncologists. One of them suggested the following article which I found very helpful,
"Should all parients Undergoing Breat Conserving Therapy for DCIS Receive Radiation?" It was published in the 2007 Journal of Medical Oncology, authors are Melvin j. Silverstein,MD and Michael D. Lagios, MD. Although this article is somewhat technical, it has valuable information that could help you make your decision.

I made the decision not to have the radiation...your case may be different. Six months later, my mammogram was negative for suspicious calcifications.
I also am embracing a "wellness" lifestyle, taking food supplements, exercising, practicing meditation, and losing weight- 20 lbs so far.
Have decided to commit myself to listen to my body, take care of myself, and be the one to make future health decisions based on multiple sources of input. The final decision is mine, and I must live with the consequences.

swalters
Posts: 33
Joined: Jan 2009

I too was diagnosed with Stage 0 DCIS and got clean margins after Dr.Lagios reviewed my post surgery pathology report. I also embrace a "wellness" lifestyle,taking quality supplements,eating no meat or dairy products, and taking bio-identical progesterone, all under the supervision of a very wellness-oriented doctor. While this may be too extreme for most,for me it is worth it if it means I never have another biopsy.

I would very much like to read the article you quoted, as Dr. Lagios served as my mentor through my whole ordeal even though he lives in California and I live in Michigan. Can you tell me what web site I can find it on? I tried but couldn't get it to pull up.

Sandie

warriorxena
Posts: 4
Joined: May 2008

Hi Sandie,

I did not get the article from a website, it was given to me by an MD doing cancer research. Since you know doctor Lagios, why not get in touch with him? I would be curious if he has written more on this subject.

I have also pretty much given up red meat, eat only chicken and fish on occasion. It doesn't seem like a hardship at this point...I actually prefer the vegetarian foods.

Nina

swalters
Posts: 33
Joined: Jan 2009

Hi Nina,

Dr. Lagios has done research for 30 years with Dr. Silverstein on DCIS. Together they developed the Van Nys Prognostic Index (VNPI) which is based on these factors: age, size and grade of the DCIS and whether clean margins can be obtained. Patients with a score of 4-6 have a 3 percent recurrence rate, which means that since radiation cuts their risk in half,it is not worth enduring the side effects for a 1.5 percent reduction in risk.

If that was covered in the article you referenced, then you know all this already. He has written volumes on the subject, but I was interested in your article because it was so current. I can get the info from the medical journal so will do that rather than bothering him.

He does have a web site where anyone can get more information or find out how to contact him.

I am impressed that your MD gave you the option of not having radiation. So often that option is not even offered.

Congratulation on your decision to develop the healthy life style. I now prefer vegetarian food also and feel much better with this diet and with balanced hormones.

Do you have a theory about why you developed DCIS? My theory was that I was estrogen dominant, but I am very intersted in what other DCIS patients think?

Sandie

warriorxena
Posts: 4
Joined: May 2008

Hi Sandie,
Thanks for replying. I will be attending a seminar on cancer next week, and hopefully will have a theory about why I got breast cancer. I did find out that my great aunt on my mother's side and my cousin on my Father's side both died of breast cancer...so I believe there is a genetic link.
I also believe our environment is full of toxic estrogens, and that these can cause cancer in both men and women. A healthy lifestyle may be preventative...but we should all do what we can to save and improve our water, food, and air.

Nina

swalters
Posts: 33
Joined: Jan 2009

Hi Nina,
I couldn't agree with you more. At a local college here recently, I heard a speaker who was a cancer survivor herself with a PHD in biology who talked about the impending environmental disaster we face if we don't work on solving this problem soon. She said it will be far worse than the economic mess we are in currently.

I would love to hear anything you are willing to share from your cancer seminar next week.

Thanks,
Sandie

ohilly
Posts: 446
Joined: Jan 2008

I'm not trying to convince you of anything, but just tell you my experience: I had two mastectomies at two different times, one was preventive (I have the BRCA gene, which means it would have been more likely that I could get cancer in the other breast and I wasn't going to wait around for that to happen) and the other was for cancer. I am very, very happy with my decision. I had immediate reconstruction, and my new breasts look and feel pretty good. I do not regret it at all. My own personal opinion is that if I had had a lumpectomy, I would be constantly worrying if they DID get the margins. No matter how good a surgeon, surgeons are only human. Also, local recurrence is somewhat higher with lumpectomy (although the survival rate is the same as mastectomy), and I never, ever wanted to go through chemo again if I got even a local recurrence. I was also glad I didn't have to do radiation because of the potential effect on your heart and it would be very hard to have to go every day.

So there you have my experience, for what it's worth.

Good luck with your decision!

Ohilly

Margaret A
Posts: 1
Joined: Feb 2009

Hi Lauren,

I too, rec'd a diagnosis of stage 0 DCIS in Dec 2008 and I just had a lumpectomy on Jan 22. My oncologist says I do not need either radiaiton or chemo, so not everyone does.
However, she took a 2nd lump out while she was there and found LCIS, which is a marker that I am at high risk for developing further cancer. Now I must make a decision about what to do next..... 6 mo exams as a high risk patient, mastectomy, or drugs (although they probably won't work for me.) I'm praying about it and researching it.

Good luck with your surgery.
Margaret

suzjazz
Posts: 17
Joined: Jan 2009

My thoughts are with you.
I had stage 0 DCIS in 2004, and had 4 lumpectomies on my right breast before they got clear margins. (There was no palpable lump so it was very hard for the surgeon to excise the correct area)
I was afraid I would have to have a mastectomy, but my surgeon was trying to save my breast.
From what I have read and what my oncologist and surgeon told me, the current thinking is no mastectomy, only lumpectomy, for DCIS (does not improve survival rates) Survival rates for DCIS are quite good with only a 4% recurrence rate after 5 years, especially if you take tamoxifen.
I hope that you have had/are having radiation, though, because that makes a big difference in survival.
I had my treatment at Dana Farber in Boston, a cutting-edge cancer treatment center, so I have faith in what they tell me.

If you are stage 0 then it has not spread to lymph nodes and you are in good shape.
I wish you well with your treatment. Don't let them talk you into or out of anything. Read Dr. Susan Love's Breast Book--she was one of the lumpectomy pioneers at a time when everyone was doing mastectomies.

Arla76
Posts: 1
Joined: Jan 2009

I opted for lumpectomy vs mastectomy. I too work full time, and I traveled 78 mi round trip for 6 wks for radiation. Maybe I was just lucky, but I was not fatigued at all. I just had to leave work an hour early each day

cocomiranda27
Posts: 1
Joined: Dec 2002

I was dx in Oct. 2002 with DCIS Stage 0 grade 0. I opted for a lumpectomy. Because I was stage 0, grade 0 I didn't need radiation. The radiatologist told me that I didn't need radiation and that I should burn that bridge. She said that if I had radiation that I wouldn't be able to have radiation again to the same breast if I had a recurrance or another breast cancer. I was only 37 when dx. I'm the only person in my family that has had breast cancer, but have many family members that had other types of cancer.

I wish you the best of luck.

Lisa

lauralew
Posts: 1
Joined: Nov 2009

Lisa or anyone with low grade DCIS,

I am not sure if you are getting messages from this message board but I would love to find out how you are doing and who your physician is. All I am hearing is that my options are lumpectomy and radiation OR mastectomy. I am looking for someone to support lumpectomy without radiation. Is there any other research besides the Van Nuys study? For some reason the surgeon I consulted with does not value that research. I have not read it yet but I am hoping to find it as well to review.

Thanks for your help, I appreciate your time.

Laura

sally11
Posts: 5
Joined: Mar 2009

Hi, I to had same diagnosis and went through it all Lumpectomy, Radiation and then Tamoxifen for 5 years. Unforutunately it came back in the same breast 6 years later. I just had a double masectomy because I could not go through this again. I also had immediate reconstruction(Tram flap). Only the flap failed on the side I had cancer. I truly believe the previous radiation caused too much damage. They don't suggest mastecomies if they can save your breast, but if I would have known what I know now I would probably opt for the masectomy with reconstruction. Good Luck, only you can make this very personal decission.

phillis313
Posts: 16
Joined: Sep 2008

Hi Lauren! I too had DCIS, stage 0. Had a lumpectomy in October '08 with clear margins and followed with radiation in December. I'm on tamoxifin now, so far, so good. I really was torn and got to the point where even reading these boards was confusing. At the time of my posting it seemed everyone was opting for mastectomies and I sometimes thought I should too. Once I did calmly weigh everything out, pray, research and talk to doctors, friends and family, I was very happy and at peace with my decision. I think just finally deciding on the treatment and moving forward was a great step. I was really dreading radiation and it turned out fine. Yes, you have to schedule it daily, but I found our center very accommodating and it worked well with my work schedule. I only had about 17 seconds a day, it took longer to drive and change, etc. Some skin irritations, but creams helped and there's no lasting damage, at least on the surface that I can tell. Bottom line, and you've seen it and heard it from many of these amazing women, your decision will not be wrong no matter what. It will be what is right for you. The best advice I can offer you is don't make a decision based on fear. Weigh it all out, write it down, do what makes sense for you. Also, If you aren't already doing this, taking someone else along with you at appointments to help you remember or write down what the doctor says can be helpful. Some even tape record their conversation, my oncologist did and it was great to go back to.

I almost feel unworthy to call myself a breast cancer survivor because my experience so far has been so minimal and nonintrusive, no chemo or extensive surgery. I don't quite want to say it's been a breeze, but I know I have not suffered to the extent or endured a lot of what many of these amazing women have gone through. Best of luck and you're in my prayers!

spa34
Posts: 2
Joined: Dec 2009

lauren08,
i, too, was diagnosed with DCIS Stage 0 exactly 3 yrs. ago December 2006 @ the age of 52. The startling news came just 3 days before Christmas. I was opposed to mastectomy as well, but tried to stay focused & did exactly what you're doing...take it a day @ a time.

However, unbenounced to me i was @ the mercy of the only breast surgeon available, who didn't know what she was doing. She removed almost 30% of the breast tissue in the right breast & still didn't get clear margins. She had the papers ready for me to sign @ my follow up appointment for double mastectomy. i began to quiver, twitch & shake uncontrollably, but by the time i neared home a calm came over me. I was then on a mission to get a second opinion & i did just that. Within 48 hrs. i was seen by one of the best breast surgeons on the eastern seaboard. Someone was watching over me as the breast surgeon looked @ me after reviewing bloodwork, mammogram, breast MRI & biopsy results that i was never a candidate for mastectomy. Finally, i could breathe a sigh of relief. She then performed a second lumpectomy within 3 mos. post first lumpectomy with clear margins no residuals.

With a previous history of pulmonary hypertension I was referred to radiation & medical oncologist, but radiation & chemo were not an option for me. Now, just three years into taking tamoxifen i've been diagnosed with very unusual thickening of the uterine lining & i'm faced yet with another biopsy. When does it end?

i don't have the answers for you, but follow your gut feeling. If you feel a second opinion is necessary then you should do it for peace of mind. i was glad i did. Good luck & God's speed!

susie09's picture
susie09
Posts: 2933
Joined: Jul 2009

Spa, I don't think Lauren will probably reply to you as her post was in January of this year. This is a really old thread that you have responded to. Sorry. I wish you the best!

♠♣ Susie ♠♣

spa34
Posts: 2
Joined: Dec 2009

sorry, i misread the date. thanks for enlightening me. i'm overdue for an eye exam...LOL!

jfm1968
Posts: 1
Joined: Apr 2010

Hi there,
I just wanted to share that my mom was diagnosed with stage 0 breast cancer about 10 or more years ago. She was very against radiation and chemotherapy. Her doctor recommended a lumpectomy (which she had done) and follow up radiation treatments as you had said. My mom refused the radiation. She did the lumpectomy only, and took the temoxifan (sp?) for quite a while. She is considered a long term survivor, and is still cancer free today at age (almost) 75. I was very afraid when she refused the radiation. But she stood strong and followed her gut...and well there you go! I just wanted to share! Jen M.

hopeful in tally
Posts: 47
Joined: Apr 2010

I was so happy to see this DCIS series on the website. I was just recently diagnosed with DCIS and am starting radiation this week. I would love to hear some recent updates from these "posters" from 2009. My understanding of a DCIS diagnosis and removal with clear margins (quadrectomy)is reason to be optimistic. I had LCIS markers which is why the Tamoxifin will be in order once the 7 weeks of radiation is complete. I recently posted a question asking about breast reduction. I am curious if anyone with the DCIS diagnosis had considered breast reduction to lessen the chances of reoccurance. I spoke with my Oncologist and he suggested it may be an option down the road. We are blessed with this website and the ability to share our story and learn from one another. I look forward to your input.

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