Jan 03, 2009 - 4:57 pm
Hi. My husband has a GBM. WAs diagnosed over one year ago..had chemo. Temodar and radiation, and surgery. We started him on DCA, extremely low dosage. We are now on a little over 300mg/kg. he weighs approx. 170lb. Recently, I'v noticed weakness in his right side..hand, arm, leg with some shaking. He was doing well, in fact 3 days after the DCA, we noticed that his langiuage abililty inproved and even began to have more stamina and was less sluggish in walking.
I'd like to know if anyone out there has had experience with DCA and how you are doing with it. I do not know if the increased weakness and increased cognitive difficulty is due to the DCA . His tumor has been progressing and his symptoms prior to the DCA. We did have some small areas of bleeding detected in the tumor which is new to us as of this Dec. His tumor was grade 4
We are praying for a miracle. If there are any suggestions out there or input, I would greatly appreciate it. We are also taking various supplements.
This is difficult time for so many of us. You will also be in my prayers.