Dec 27, 2008 - 6:53 pm
I was diagnosed with follicular cancer in October and had two surgeries to remove my thyroid. My surgeon is an ENT who referred me over to the Endocrinologist immediately after my surgery. The surgeon had advised that we would be doing the radioactive iodine treatment followed up with scans peridiocally. Two weeks after surgery when I went to see the Endocrinologist he said he wasn't doing the iodine and he waasn't doing any other scans (I have another spot on my spine we are trying to identify because it can't be biopsied). He even went so far as to tell me that he had just come back from a conference where he was told thyroid cancers have been treated too aggressively in the past and that he would have just left mine in my neck. Supposedly this is THE endocrinologist to go to at this medical center and I am really worried about my treatment.
Has anyone else heard that thyroid cancers are being treated too aggressively? I'm in Dallas and we have some great research hospitals in the state, but nothing I've seen supports what this doctor is telling me. I have a history of skin cancer and colon cancer in my family so I am pretty reluctant to accept this. Has anyone else not had the radioactive iodine?