CSN Login
Members Online: 12

Update to Scared and looking for advice

hscvt
Posts: 16
Joined: Nov 2008

Hi -

I wanted to update with my ultrasound results since I picked them up today. Not sure what to make of this but am even more confused and nervous I guess you could say.

First ultrasound done on November 5, 2008 - had been abnormal bleeding at this point since October 24th and this stopped a week after the ultrasound on November 12th. Was not a heavy bleed but constant bleeding present.

Results - Uterus measures 10.2 x 4.3 x 5.9 cm in size. A 7mm hypoechoic uterine fibroid is identified near the uterine fundus posteriorly. The endmetrial strip is slighty irregular measuring 10mm in thickness. No focal lesion is identified within the confines of the endometrium. There is a simple cyst on the right ovary measuring 15.cm. Left ovary is normal in appearance. No free fluid within the pelivis. No abnormal adnexal mass.

So then I had an ultrasound done on November 21st. I did not know it but I started to bleed 4 days after this ultrasound - and think this might be my period. This was evaluated by a new radiologist.

Results - Complete transvaginal examination shows no change in the appearance of the endometrial stripe, which is still prominent measuring up to 16mm in thickness. There is color Doppler arterial flow seen within the endometrial stripe. Cause and significance cannot be determined and a sonohysterogram is recommended for further evaluation.

There is no change in 7mm hypoechoic uterine fibroid near the uterine fundus posteriorly.

Both ovaries are again within normal limits with a small right ovarian follice. There is no adnexal mass, no fluid in the cul-de-sac.

So now I'm also worried about the color Doppler and what the means. I knew they did it because I could hear it when they were doing the ultrasound - couldn't see anything but know they did it both ultrasounds. It is not mentioned in the first one - but I think that they did see something on the first one cuz she kept doing the Doppler when she was looking towards the left side (Or it seemed like she was looking towards the left side)

Any ideas what that is? My doctor didn't say anything to me about it either. I am also mad that they never even told me from the FIRST ultrasound that there was thickness present or a cyst on the ovary or the fibroid. They just said that they couldn't evaluate anything and I needed to have it repeated. UUGGGHHHH healthcare!

Thanks!

deanna14
Posts: 734
Joined: Oct 2008

I don't really understand everything in those reports. I know that when my doctor explained the ultrasound results to me, he told me that normal endometrial lining was 4-5mm and could be as much a 8-9 if you were just getting ready to start your period. Mine was 15mm.

I would be sure to take those reports with you to the gynecologist on Thursday in case they didn't send them. I don't understand why the original ultrasound would not have been explained to you. That really is unacceptable and a huge waste of time if there is a problem. I don't know who you should talk to, but I would certainly find out. Depending on how they respond to that, I would consider finding a new physician. I think you have every right to be upset and angry.

Again, hang in there. I know Thursday seems a long time from now. Try to stay busy. Hopefully the gyn you are going to can explain those results to you. I would still push for the D&C.

I'm here if you need to talk.

hscvt
Posts: 16
Joined: Nov 2008

Thanks for responding - like I said I think the increase in size was because I started bleeding 4 days after the second ultrasound - but the first one was not right before I started bleeding - it was a week before I stopped bleeding and I had already been bleeding for over a week. Everything I have read states that while you are bleeding at that point, your lining thins - (and that was not my period)

I have been dealing with very heavy bleeding which has finally slowed down today but the cramps are unbearable. Today it isn't like my normal cramps - it's more like pain with pressure in my low abdomen. Very uncomfortable.

Yes Thursday is a long time away to me - I got put on the GYN cancellation list so hopefully someone will cancel so I can get in sooner. My work knows what is going on so they would understand if I had to go in last minute...except I teach so if the call came during class time - that might be a little hard to find a sub last minute. When I read the ultrasound results yesterday, I broke down crying. I am just so very scared. I didn't sleep at all last night and didn't even get to bed until after 4am.

Thank you so much for responding to my posts - I really can't tell you how much I appreciate it. I just want to know what is going on - hopefully it's not cancer but if it is - it's something I'll just have to deal with right? I'll definately let you know what the GYN says.

Thanks again and have a great day!

deanna14
Posts: 734
Joined: Oct 2008

I hope you are hanging in there and that you are feeling better. One thing about all of this, I will not miss those cramps!

Sometimes crying is the best thing you can do. I really think it is healthy to get it all off your chest. Have you shared what is going on with family or friends? It really helps to have someone you feel close to, that you can talk to. This discussion board really helps also. Just being able to talk to people who can relate to how you are feeling is important. I hope and pray that you don't have cancer, but I can still relate to your menstrual difficulties. I always had a hard time with mine, it is miserable to have to live life around your period!

Keep in touch, and know that we are here if you need us!

hscvt
Posts: 16
Joined: Nov 2008

Thank you for the post - I appreciate it. I was hesitant to talk to family until I knew what was going on - but I did share with my mom and dad. That's the hard part though because they automatically get all worried when I don't even know for sure what is happening.

Anyhow, the cramps have let up but I still have "pain" in the area. Last night it got really bad - very sharp. The bleeding is letting up right now as well - so we'll see what happens over the next few days.

I can't wait until Thursday when I can talk to the GYN. It seems to far away yet - I am on her cancellation list and I hope I can get in earlier - but don't know that will happen.

Anyhow, you guys have been great and I really appreciate it! Hope your Thanksgiving was good....and yes I have been doing alot of crying. Trying not to worry and jump to any conclusions. Just want to know what is going on regardless of what it is. I am hoping that either way and whatever it is - this will be my ticket to a hysterectomy that I asked for 3 years ago - I am not going to have any more kids - in fact I don't even have my fallopian tubes so I can't have more kids - and would LOVE to not have these cramps anymore. I have always had cramps but typically they only were present on the first day of my period..now I have them almost the entire time and then inbetween. They are for sure getting worse. I am going to be making a list of symptoms I have been experiencing so I can take that with on Thursday as well.

Thank you again..I really am thankful for your posts!

deanna14
Posts: 734
Joined: Oct 2008

How are you today, are you hanging in there. I hope you are feeling better and keeping a positive attitude. I just wanted you to know I'm still here and thinking about you.

hscvt
Posts: 16
Joined: Nov 2008

Hi there - Thanks for the post....I am OK - Exhausted but OK. I am having pain in my lower abdomen - it isn't cramps but it gets somewhat severe at times. I am only light spotting right now (day 8 since it started) and can't wait until Thursday. I am having a hard time with feeling like I have to urinate all the time. I will go and as soon as I am done and get up - feel like I have to go again right away.

Thanks for checking in with me - is there a way to exchange emails without putting it on the public discussion board?

deanna14
Posts: 734
Joined: Oct 2008

I don't know if we are supposed to do this, but you can email me.
I'm glad you are hanging in there. Know that either way this turns out, you are going to get the mentrual problems ironed out so that you can feel better.
I'll talk to you later. I'm here if you need me :)

deanna14
Posts: 734
Joined: Oct 2008

HSCVT,
Are you still around? Just wanted to check in and see how you are doing. I know you won't know anything until later in the month. I just thought I would say hey and tell you to hang in there.

hscvt
Posts: 16
Joined: Nov 2008

Hi there -

I am still here. Will have my test done next week Thursday so not looking forward to it. Thanks for checking in - I did send you an email a couple of days ago and have not heard back from you on that but glad that you checked in with me on here.

I'll be sure to keep you updated on what is going on. I am not bleeding right now which is amazing :) Just waiting to see if I start again and when.

deanna14
Posts: 734
Joined: Oct 2008

Sorry I didn't reply to email, I must not have gotten it. I will check again to be sure.

hscvt
Posts: 16
Joined: Nov 2008

It's OK - I will check and see if I can find the last one I sent and send it again. Sometimes people don't tend to get emails that I send for some reason. I'll double check.

deanna14
Posts: 734
Joined: Oct 2008

I did get your emai the second time. I hope you are feeling okay. Just a couple more days until your test. Just wanted to wish you good luck.
I have next radiation treatment tomorrow and my last one next Tuesday. I am excited about completing that phase of treatment.
Hang tough. You will have answers soon!

hscvt
Posts: 16
Joined: Nov 2008

So - I got a call tonight from my doctor's office telling me that my doctor was out of town and unable to get back into town by 8am tomorrow morning when my test is scheduled. So they cancelled it! I am so angry!!! It's not my problem that she is out of town. They asked me how I felt about having it done New Year's Eve?? I told her that was not acceptable! I did ask if it had to be done with my doctor or if someone else could do it - and she said yes that a nurse practitioner can do it - one that is trained to do it. So she is going to look at the schedule and call me first thing in the morning.

This is my luck - I can't believe this and am really angry. I did tell the nurse this needed to be done before Christmas. I am not going to sit here much longer and wonder - I want answers!

So that is the latest update.

deanna14
Posts: 734
Joined: Oct 2008

Sorry to hear you are going to have to wait. If I were you, I would push to get it done as soon as possible and I know you are trying. Good luck.
In the mean time I hope you are feeling well, other than the anxiety of having to wait.
I can certainly understand that you are angry, I would be too. Maybe they will have something when they call you in the morning.
Keep me posted and keep your chin up!

hscvt
Posts: 16
Joined: Nov 2008

Well I have not had any abnormal bleeding during this cycle, however, lots of pain - it's not all the time..usually cramping feeling most of the time - however I have been getting sharp shooting pains that double me over for a second. Very painful. You know I was thinking about it - if we called and cancelled less than 24 hours in advance, we get charged the office visit or we get kicked out of the clinic....however, it's OK for the doctor to cancel last minute like this - and not for a good reason if you ask me. She was on vacation - so she is out of town and doesn't think she'll be back in time. Give me a break! I am so angry about this. I told my husband that if they call me tomorrow and say they can't get me in until January - then I will be contacting my primary care physician tomorrow and insisting she refer me to someone else that will do this NOW! I am so angry that they are pushing this off.

deanna14
Posts: 734
Joined: Oct 2008

Just wondering if you found anything out this week. Hope you are feeling okay. I have been busily preparing for Christmas. If I don't talk to you before, have a Merry Christmas. Keep your chin up!

hscvt
Posts: 16
Joined: Nov 2008

Well I asked them if I could just have the biopsy done in the office to get that part done and over with...then wait on the saline ultrasound. So I will have the biopsy at least done tomorrow at 9:15am in her office. After my next period then I will have the saline ultrasound done. So at least I got them to do the biopsy. Not sure how long it will take to get results back since it's the holiday time.

Anyhow, Merry Christmas to you as well.

deanna14
Posts: 734
Joined: Oct 2008

If I were there, I would go with you for moral support. I hope you are feeling well enough to enjoy the holiday. Take care. Talk to you later
Deanna

deanna14
Posts: 734
Joined: Oct 2008

Sorry double post... not sure why. Very tired

hscvt
Posts: 16
Joined: Nov 2008

Hope that you have a great Holiday - How are you feeling? You have been so kind to ask how I am doing when you are going through treatment as we speak - I don't even know 100% what is wrong with me yet - so you have already given me moral support which I greatly appreciate.

Take care of you and I hope you are feeling well and have the best Holiday ever (as a newlywed) and a Happy New Year!!!!!

deanna14
Posts: 734
Joined: Oct 2008

How did everything go today? I hope you are feeling okay and at least have a start on getting the answers you need.
Hugs,
Deanna

hscvt
Posts: 16
Joined: Nov 2008

Hi there

I just happen to be up and online so I just got this message. It was awful. Sorry I did not enjoy the biopsy at all and thought it hurt - in fact I screamed and started crying I normally have a high pain tolerance. I still have some cramping which is why I am still up. She said that I may have answers end of this week, although with the Holiday it's more than likely going to be early next week. I have the saline ultrasound done on January 6th. I hope this biopsy is enough as if it comes back inconclusive, I will not have it done again - they will need to knock me out.

Thanks for checking in-

deanna14
Posts: 734
Joined: Oct 2008

Howdy,
I was just wondering how you are doing? I presume you have your biopsy results back and hoping that no news is good news. Unless there has been a change of plans, you should be having your ultrasound tomorrow. Good luck with that, I hope all is well.
Hoping you and your family had a joyous Christmas and a Happy New Year. Take care.

hscvt
Posts: 16
Joined: Nov 2008

Hi -

Sorry..I have been so busy with the holidays - hope your was a good one.

The biopsy results came back as normal tissue - however, I just had the saline ultrasound today which showed a very large polyp in my uterus - which she stated has to come out because that could be cancerous. So I am not out of the woods yet so to speak. She first talked to me about having a uterine ablation after the polyp was removed or placing an IUD to help with my heavy bleeding however, I asked her about hysterectomy - she did tell me if that is what I wanted done - she would do it. So I am going to schedule that for hopefully March. I can't have children (Had my tubes removed due to numerous ectopic pregnancies) and I don't need it...

I am wondering if this polyp has been present for the last 3 years. 3 years ago I was going to an infertility specialist who ordered an ultrasound be done. She told me she saw a polyp and wanted to do surgery. My family doctor recommended I have the saline ultrasound done first (like I had today) and that doctor who preformed that told me there was no polyp. But with the size of the polyp that is there - I wonder if it's been there for that whole time. I hope not although it would make sense. I don't know if I"ll ever know the answer to that.

Thanks for checking in - I was thinking about you and that I wanted to let you know what has been going on - just busy.

rainyjane10's picture
rainyjane10
Posts: 8
Joined: Jan 2009

Don't know how much of myexperience will be of help to you but I have always had horrible periods since I started in 4th grade. When I was younger no one seemed terribly concerned and when I got older I simply quit going to doctors because of a number of bad experiences with some doctors who never should hae been doctors.

About a year ago the periods got really bad. I thought I was just getting ready to go into menopause. But one night I was sitting at the computer and when I stood up after an hour blood started gushing and wouldn't stop. After nearly passing out I drove myself to the emrgency room and told them I thought I was bleeding to death. It's amazing how calm you get when you have lost 1/2 your blood. I was admitted immediately and put in ICU where a nurse sat with me all night as they thought my heart was going to fail from the loss of blood and I was given 4 pints of blood that night.

The next day after they finally got the bleeding to stop they did an MRI and found that I had a 10 pound tumor that had hemoraghed. It was so big that it was laying on my liver and kidneys which they were worried about. They did an emergency hysterectomy and removed the tumor the following day. Amazingly there was no damage to the other organs and because everything looked fine and there was no sign of cancer they left my ovaries.

Two weeks later when the pathology report came back it turned out that the tumor was mostly fibroid BUT there were cancer cells (very early stage)in the lining of the uterus and they had to go back in to remove the ovaries and biopsy the lymph nodes. The second surgery was not as easy as the first (not that it was easy but since it all happened so fast there wasn't time to think about it) and there were numerous (non cancerous) complications which made the whole experence a nightmare but everything worked out for the best. I tell you all of this simply to show you that while the fear is absolutely unavoidable while you wait for test results and doctors to make decisions there is a light at the end of the tunnel and all may work out for you in the end.

If I had not nearly bled to death my doctor said they would not have found the cancer in time to remove it so easily (I have not even had to have radiation so far), if I had not had to have the second surgery they would not have found the raging infection inside the first incision and I might have died from that. Two days later while still in the hospital I had a stroke and my nurse who was watching me found one of the leading stroke doctors in the world was making rounds right outside of my room. If I had been home alone no one would have been there to notice and in another two days a new procedure to put a stent in my brain was performed. A month later there was almost no sign that I had had a stroke. Through every step I was where I needed to be at the time. So hang tight.

I wish I had found this spot when I was going through all of this pretty much alone. It would have been nice to know there were others going through what I was and who totally understood.

One thing that helped me through was I kept a written diary of what I was going through and sent it out to my friends via email. Writing to them helped them understand what I was going through, it gave me a place to vent, and it helped me keep my sense of humor which I desperately needed. Writing really is cathartic.

And this place will give you so much peace...just reading other posts and realizing that there are people going through the same things you are.

This all happened to me starting just before Thanksgiving 2007 and the worst parts of it were that when my pathology report came back with the C word my doctor was on a 2 week vacation so her associate told me I had cancer and would need a second surgery but they would wait until my doctor came back to decide what to do so I sat and cried for two weeks not knowing anything. Then the insurance and the hospital decided not to cooperate with reports and billing and my $200 a week disabiltiy check (my only means of support since I couldn't work) was cut off leaving me no money for rent, food, and utilites not to mention what it does to your Christmas spirit. I felt so alone even with friends there because while their hearts were in the right places they just couldn't understand from my point of view like the people here can.

But I came through it and I have been cancer free for 1 year now. So good luck and keep your spirits up. My prayers are with you.

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network