Hi, I'm new here.
My daughter, age 3, was just diagnosed with Ganglioneuroblastoma. Last week they removed a large tumor the the posterior side of her chest. The finding was complete luck, I have a very through ped doc who was ruling out pnemonia because she had been vomiting. (Oncologists do not believe that the vomiting had anything to do with her cancer)
The results that we have gotten back so far have been good, the histology is favorable, the bone marrow had no disease, and there was no gene amplification.
We are scheduled to have a bone scan and a MIBG scan next week.
I am so scared and am looking to talk with others that have been on this journey who can offer me words of advice and encouragement.
The worst words I have ever heard is that my baby has cancer. Any information you have would be appreciated.