Oct 24, 2008 - 1:22 pm
I am new to this forum. My husband was dx with a gbm IV 9/07. Since his dx he has had 3 resections, radiation, and temodar. His dr's determined the temodar was not working so they recommended a trial using XL184. There is not much info out there and I am anxious about starting him on it. He is scheduled to start on the trial on Monday. I have been on several support groups and found many promising comments on avastin/cpt-11. My husband chose not to use this because while he was able to do research himself found only negative outcomes with the avastin/cpt-11. I am starting to second guess his choice.
My husbands last resection was 9/25/08. He is still very weak with alot of nausea, headaches, and muscle weakness. All he is on right now is the dexamethasone and protonix. I don't get where the issues are coming from. He has been on the dex since 9/07 and has never had these issues.
Any comments or opinions are greatly appreciated.